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Connie Faust

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Member Since: Jul, 2006

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Through The Fire
by Beth Trissel

Will Love inflame these two natural-born enemies in fiery destruction? Set in the Colonial American frontier, Through the Fire is an adventure romance with a The..  
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Blogs by Connie Faust

Finally a diagnosis for Elizabeth!
7/15/2009 10:41:35 AM
As Elizabeth's Mommy says, "Keep praying, keep believing"
You don't often see faith as steady as this young mother's.

Day 293
Sorry about not updating yesterday, I had trouble getting on the site. SO, WE HAVE AN ANSWER... It is PTLD, Post Transplant Lymphoproliferative Disease. It is not a good answer but it is an answer and we have treatments and we have God. He has carried Elizabeth through lots of 'not so good diagnosis'" and He WILL carry her through this and heal her. We HAVE to BELIEVE that with ALL our heart. My faith in Jesus and KNOWING that He CAN heal has gotten me this far and shown me that I have patience and strength that I never thought possible. This whole journey has not been easy but these last couple of weeks have been more than overwhelming and I still have PEACE in God's plan. I BELIEVE so much in Elizabeth and in her purpose on Earth to be a testimony of God's love. She is a fighter. The little girl screamed ALL night again. She has pretty much been screaming since she was extubated at 3 on Monday. Can you imagine just sitting there and screaming day and night for 40 hours. She is not going to stop until she gets what she wants. And that is fine. There must be a reason for this and although it has been SO hard on me I'm trusting that maybe she just might need to be screaming right now. She is getting better. Her carbon dioxide levels are MUCH better, we have stopped the anti-fungal that was requiring ALOT of fluids and was hard on her organs and we have been reducing her Hi flow oxygen. She is now screaming with words and yesterday while we met with the doctors, her and Grammie did lots of stickers. She knew all her colors and could answer all questions asked. She is AMAZING and we all love her SO MUCH!
So, we started treating Elizabeth for PTLD last tUesday when the doctors starting thinking it might be the problem. Her treatment right now will be Rituximab and Hydroxyurea. This is a vERY RARE disease (surprised?!) and the treatment is not definite yet. My doctors are contacting doctors at other institutions that have more experience with treating this to make sure we all do what is best for Elizabeth. This is caused from the EBV(epstein barr virus) that has gotten into a B cell and infected it and started duplicating. The goal is to kill those cells, just like our goal was to kill her cancer cells and WE DID! Pray for our doctors and that this treatment works with NO other side effects. Pray that Elizabeth will be restored to TOTAL HEALTH very soon and be HAPPY HAPPY HAPPY! My thanks and love for all your prayers and support. Please continue this journey with us so you can see how GOOD GOD IS! Keep Praying Keep Believing Love, Michelle


Comments (2)

More Blogs by Connie Faust
• Amy's Dilemma - Tuesday, January 21, 2014
• A Prayer by Max Lucado - Thursday, April 18, 2013
• Sandy Hook Comfort - Tuesday, January 08, 2013
• Remembering Mom's /Clothesline - Sunday, September 02, 2012
• Thinking about me, my health and the work I have to do - Thursday, July 05, 2012
• Cellmates -- The Madman of the Gerasenes - Wednesday, March 28, 2012
• My Little Sugar - Thursday, February 09, 2012
• One Sick Little Doggie - Saturday, January 28, 2012
• Aaron and me - Friday, January 27, 2012
• Too precious--MUST SHARE! - Monday, July 18, 2011
• Spring is on its way! - Sunday, March 13, 2011
• Beautiful word--Stable - Wednesday, July 07, 2010
• July update on Esa - Wednesday, June 30, 2010
• Esa Has A Problem - Tuesday, June 22, 2010
• Esa's Eyes Are Stable - Monday, May 24, 2010
• Esa's Update for May 18, 2010 - Tuesday, May 18, 2010
• Peter Cottontail's always busy! - Saturday, April 10, 2010
• It's all about family - Monday, March 08, 2010
• Family Concerns - Wednesday, February 10, 2010
• God's Training for His Special Forces - Tuesday, January 19, 2010
• In the prison of your circumstances - Tuesday, January 19, 2010
• An Update on Esa - Wednesday, December 30, 2009
• Connie Hinnen Cook's halloween advice - Tuesday, October 27, 2009
• Welcome Home, Elizabeth - Tuesday, August 18, 2009
• Day 315 for Elizabeth - Wednesday, August 05, 2009
• Precious Toddler Elizabeth Struggles to Get Well - Tuesday, August 04, 2009
• Improvement for Elizabeth - Saturday, July 18, 2009
• Elizabeth really needs prayer - Friday, July 17, 2009
•  Finally a diagnosis for Elizabeth! - Wednesday, July 15, 2009  
• Elizabeth Dunford Update - Saturday, July 11, 2009
• May's Anniversaries - Friday, June 26, 2009
• "Which Side Are You On?" - Monday, May 25, 2009
• Hallelujah and Thank You, Lord! -- Jason :-) - Wednesday, April 22, 2009
• Introducing Elizabeth Dunford - Saturday, April 04, 2009
• Where is our dear Bonnie? - Thursday, April 02, 2009
• Esa, Jason and now TAYA - Wednesday, March 25, 2009
• Portrait of a Christian - Wednesday, February 25, 2009
• Thank You, Jesus, for Esa's good report! - Wednesday, January 21, 2009
• Esa and Jason January News - Tuesday, January 20, 2009
• Sharp-shooter Jason In The Treestand - Tuesday, December 16, 2008
• Christmas time prayers for Esa & Jason & more - Tuesday, December 16, 2008
• Sharpshootin' Jason Zosh - Thursday, November 20, 2008
• Great Rejoicing and Thanks-giving! - Wednesday, November 19, 2008
• Yes! - Thursday, October 30, 2008
• Good News, Please! - Wednesday, October 29, 2008
• A BIG DAY FOR ESA - Tuesday, October 28, 2008
• How's Jason? - Wednesday, September 24, 2008
• WATCH FOR ESA ON TV! - Wednesday, September 24, 2008
• Esa Update/Jason Update - Wednesday, September 10, 2008
• ESA HAS SURGERY TODAY - Tuesday, September 09, 2008
• The Brave Little Soul by John Alessi - Friday, August 22, 2008
• News on The Babies - Thursday, August 21, 2008
• Esa's Chemo Started this week - Wednesday, August 20, 2008
• The Last Chemo--hopefully forever! - Thursday, August 14, 2008
• Never thought I'd go gaga over zucchini! - Monday, August 04, 2008
• The Computer Swallowed Grandma - Friday, July 11, 2008
• ESA - Good Day - Sad Family News - Friday, July 11, 2008
• Walking the tightrope - Thursday, June 12, 2008
• Righteousness - Friday, June 06, 2008
• Esa's toddler cousin--a tragedy - Thursday, June 05, 2008
• from Mom to Grammy in 9 easy steps, er, months, that is. - Saturday, April 05, 2008
• When you're tired, write about the weather and the grandchildren - Saturday, February 09, 2008
• Speaking of angels........ - Monday, November 19, 2007
• Women of Hope Eat In - Friday, August 24, 2007
• I'll Keep On Shining! - Tuesday, June 12, 2007
• What God is accomplishing with my poetry - Saturday, June 09, 2007
• Moving On -- My Favorite Things Last Verse - Saturday, May 05, 2007
• Oh, those neighbor kids! -- My Favorite Things, Part Four - Saturday, April 28, 2007
• Does Mother Miss Me? - Friday, April 20, 2007
• Round The Neighborhood--My Favorite Things Part Three - Wednesday, April 18, 2007
• Bird in the attic--My Favorite Things Part 2 - Thursday, April 12, 2007
• My Favorite Things--Part One - Sunday, April 08, 2007
• Sugar Plum - Sunday, February 04, 2007
• Cooking The New Year In - Monday, January 01, 2007
• Psalms and "Problems" - Monday, December 04, 2006
• Why should He not bruise me? - Saturday, December 02, 2006
• Fall Fun Day - Saturday, October 14, 2006
• Blog, What blog? - Saturday, October 07, 2006


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