A piece written for people with Multiple Sclerosis

Unable to think, incapable of activity, inadequate and limited, each originating from something called fatigue. One would never assume a seven letter word could produce such a multitude of complications in an individual's life. How could it possibly dictate a person's every decision? Please somebody, help us to find the source of it's fury.

Resources tell us, the number one symptom experienced by those with Multiple Sclerosis is fatigue. We certainly know it!! Before MS, I would consider fatigue equivalent to tired or sleep deprived. Surely I didn't deem it as a life-altering attribute. Never would I imagine it to carry such a humungous significance in my life. This train of thought halted with the diagnosis of MS. I quickly was awakened to the reality of fatigue reigning my existence. From that time on I should learn to adapt my life to the dominance fatigue would have over me.

Waking each morning, or should I say opening my eyes, the day begins. Not knowing what this particular day will unfold, I slowly climb out of my bed, making my way to the kitchen. Usually I enjoy a cup of coffee but always I go to my medicine chest to retrieve my pill to counteract my fatigue. I'll admit, this medication is a bonus and usually with its help, I can manage to conquer the day, one filled with challenges requiring energy and motivation.

Friends and family members look at me oddly at times I am sure. You see, outwardly I appear to be fit as a fiddle. For the most part I attempt to carry on like any normal individual. Others may conclude that MS doesn't really affect me too much. Oh but if they could only realize just how tiring it is to lift my arms sometimes, how difficult it is to walk through the Shopping Mall, how tough it is to stay alert while driving or just how impossible it can be to remember someone's name. These seemingly small tasks can be gigantic hurdles when fatigue raises its nasty head. Actions and exercises that most take for granted, can often be overwhelming for someone fatigued.

This "fatigue" has rearranged my life. It has also helped me to sort what is important and what is trivial. Every day we humans, normally would set out on a routine mission which includes chores seemingly at the top of the list. That is the world that I lived in until MS and fatigue. Another day meant eight or nine hours in the Salon, meals to prepare, clothes to wash, furniture to dust . . . All of this was imperative that day. I have discovered or accepted that many of these tasks will still be there tomorrow. I've resolved to use my energy doing things I enjoy first and foremost. For a person who is fatigued, there are only so many productive hours in a day. I'd prefer to spend them wisely.



By: Joanne Marsh
Written: March 2003