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Patrick A Granfors

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Alzyisms Part 2
By Patrick A Granfors
Last edited: Saturday, May 30, 2009
Posted: Friday, May 29, 2009



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Alzheimers isn't going away

ALZYISMS

Part 2

 

May 26, 2009

Temporary Reprieve

 

Today is transport day for mother to go to my brother’s in San Jose. I walk her to the gate through security at the airport after checking her bag. No carry on. It will end up in Dallas or Toledo. Southwest makes it easy to get an escort pass. Not all airlines do. The last thing they want is for her to wander in her absent peaceful bliss wondering why she is at the airport.  But she says enjoys the flight.

 

Packing is an adventure. My brother and I came to the conclusion a few months back not to give her more than 24 hour’s notice. Preparation for travel had always made her uneasy. The Alzy just amplifies it. If I gave her 3 days to pack, it will take her 3 long agonizing, confusing days.  For one small suitcase.   And her Meds, two prescriptions. So we wait till the day before she flies.  I’ll tell her to pack 5 shirts, 3 pants, 7 panties, some bras, for example.  Her condition requires that these instructions are given separately. So I’ll start with the pants. I tell her to choose 3 and excuse myself.  When I return she usually has completed the task and sometimes even packed the undergarments and socks.

 

But the shirts are always another matter.  I repeat the instruction for her to choose 5 from her closet and tell her I’ll be back shortly.  It doesn’t really matter if I’m away 5 minutes or an hour, when I return there are no shirts in the suitcase. She can count just fine. She just can’t choose shirts. She says she want to make sure they match her pants. I say fine, if you need more to match that’s ok too. But it’s not about numbers, it’s about choosing. It won’t happen. So rather than waiting for hell’s icicles, I choose for her and she dutifully folds and packs them away.  The temptation is to just do it all but I think she needs the stimulation.

 

I don’t know, maybe I’m just torturing her. Health care professionals and Alzy experts say that routine is the key. Non routine does a disservice.

 

But the merry-go-round visitation cycles are for us, me, my wife, my brother and his wife.  Our own mental health and marriages are at stake here. 

 

One solution would be to put her in an assisted living facility.  But I think that she functions just highly enough that it would serve only to break her heart.  My wife just shakes her head, and my brother, and his wife I think. They have hearts too.

 

What possible explanation can I provide when Eileen reminds me that we too have a finite lifespan.  So much living yet to do in such a short time.  And she’s right. We are pushing our 60’s and are we being fair to ourselves not to live as we choose?

 

There’s that word again, choose.  I guess I take after my mom. I hate the word.

 

I wrote a haiku about this called “attempting to respond.” It’s in my poetry section.  I thought I wrote for my wife.  Now it looks like I wrote it for me.

 

In the meantime we have a few weeks to decompress and reassess, and maybe choose.

 

 

 

 

 

 

 

 

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Reviewed by m j hollingshead

you have learned what we all need to remember, we get one mom, and what we do with her while she is living will comfort or sadden us when she is gone.

prayers for you all

I believe you will be fine

Reviewed by pat medlin
i can see clearly why there are no more more comments...there simply are no words.

what a neat person you must be...not 'must be'...obviously are!
Reviewed by MaryGrace Patterson
I can understand what you are talking about . Its hard for your mom too . When a person first learns they have this its like a death sentance and really takes time to adjust and accept. Theer is a genetic link in my family and all 6 of my children have a chance of getting this. One already has it.. I can understand what your wife is saying , but what if it was her mother, would she feel the same way.?. You have someone to share the load with .You are so lucky.. When your mom is at your brothers ,, do extra things with your wife , let her know shes important too. Your mom can't stop whats happening to her, neither can we.. Unfortunately its a cross we must bear. I can't tell you what to do , but it you put her in a home now, she'll realize it . I worry about us also AND our future.. I think writing and sharing whats going on will help you to cope better. I'll try to help you if I can also...I think you are doing a good job in planning things out and giving her a structured enviroment. God will reward yuo in the end and you'll know that you did all you could for her. She'd do it for you , Im sure of that!....Hope this will help you some.. Please take sometime and read what I've written.. Most is under poems , some in stories I think...M

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