In February this year I made my first visit to the Westmead Hospital Glaucoma Clinic for this year. More frustrations with the prescriptions but finally after 3 treks from one side of the hospital to the other I had the correct prescriptions and the drops.
I've been using 3 drops now since last December and the latest, AlphaganP, did make a difference to the pressure reading in my right eye as of the visit in February. I agreed then to commence using the drops in my diseased eye as the pressure was still too high. I've been dosing up 3 times a day x 3 drops since early February and my next visit to the hospital is in May.
I have had keratitis attacks in the left eye since commencing with the drops and that is disheartening. However, by using antibiotic cream quickly as soon as I knew there was a problem, I've managed to stay off any ulcers to the cornea. Keratitis is listed as a possible reaction to the AlphaganP drops.
My vision hasn't improved and in fact it's worsened as far as seeing well in poor light. I know that the drops are making this more pronounced because they are keeping a lot of the light out. It's making life a tad difficult as I'm totally lost in the dark and sun blind. My peripheral vision is much less now as well so I'm apt not to see things that are out of my vision range. I am still driving and it's okay except that I am much more wary of vehicles that I may not be able to see, even in the driving mirrors on the car.
I am nervous on stairs and avoid them whenever possible. I've made reservations for my daughter and I to see Lisa Williams (clairvoyant and medium) in Sydney early April and have seats in the very back row near the entry doors to the theatre. This will save having to go down any stairs to our seats. The problem is that when I look down I don't see how many steps there are, only the few in front as I move down. Unnerving to say the least. Uneven ground is another problem as I don't see rises and falls so when you see white lines at the edges of steps and gutters you will know why they are there. For people like me!
I walk into things frequently and feel unsteady on my feet. Sitting and lying down are my comfort zones now. I'm sure you can imagine how much that frustrates me.
I've been told that my eyes are dangerously close to fixation. I don't even want to know what that is but I imagine it means I will only have forward vision (tunnel vision) and if that day comes then there won't be any driving anymore. Strange how we accept things and don't ask exactly what it means or even go searching for the answer. I guess it's the 'what you don't know can't hurt you' syndrome. Or maybe the head in the sand one.
Only working 4 days a week is helping me because I have 3 days here at home where I'm not exposed to any unknowns. I am trying hard not to lose my independence nor to allow things to phase me too much. However learning to live with a disability isn't easy and retraining the brain to compensate takes time. Positive thinking keeps me going but sometimes I feel totally frustrated and emotional about this disease that no one can fix. All anyone can do is try to hold it back and not allow it to take over without a fight.
Until next time.