True Life Stories for the Senate Health Care Reform Bill

           by

Jane St Clair

Author of Walk Me to Midnight

Rom Houben was only twenty-years old when he was involved in a terrible car crash.  Once a handsome, athletic engineering student who loved martial arts, he fell into a coma after his 1983 accident. For the next 23 years, his doctors believed he was in a vegetative state, although his mother knew better.

In 2006, one of his doctors went out on a limb and decided to use a new technology to scan Rom Houben’s brain. This was an unusual thing to do.  Rom Houben was what’s known as “back ward case” -- someone who gets very little attention because there’s no medical way to help him recover.

The new test showed what his family suspected all along – Rom Houben was conscious of everything around him, could hear and understand what everyone was saying to him, but had no way to let other people know that.  He literally had tried screaming at his nurses and doctors, but no one understood that he was a thinking person, who needed to communicate and read and take part in life, even though his body had failed him.

Under the new Senate bill, people like Rom Houben have no protection from well-meaning doctors and nurses who wrongly label them vegetables, not human beings.  Under the new Senate bill, health care providers paid with government money could withhold food and water from vegetable-people, even though, as Rom Houben clearly teaches us, mistakes happen.

To give the Senators credit, their new bill is not nearly as rough on helpless and terminally ill people as the House bill was.  The Senate bill contains specific language against the “promotion” of “assisted suicide” and euthanasia.  In the spirit of the season, let’s give thanksgiving. We can be thankful that our representatives listened to the American people’s concerns about end-of-life issues. We can be thankful that under this new bill, the federal government is not going to “promote” euthanasia and mercy killings as health care treatments.   So far that is only being done in two states – Oregon and Washington – where people whose medical bills are paid by state governments have been offered cheap “assisted suicides” instead of expensive cancer treatments.

However, the language in the Senate bill needs to be strengthened to protect people like Rom Houben and to make sure that “assisted suicide” does not spread as a medical treatment, especially one that could be offered through government-paid programs like Medicaid, Medicare, and the “government insurance exchanges”  as created by the new Senate bill.  Promising not to "promote" euthanasia and mercy killings is not the same as being against that.  Also, there is nothing in the bill that specifically prohibits discrimination against patients who are elderly, disabled or terminally ill.

               By the way, the term “assisted suicide” is a meaningless phrase because suicide is by definition something you do yourself.  The accurate term is “medical homicide.”  

                  For example, removing Rom Houben’s food and water tubes would not have been an “assisted suicide” but a medical homicide. If you don’t believe that, you can ask him. He is no longer considered a vegetable and he can communicate now. After 26 years, somebody finally gave him a keyboard.