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Stacey Chillemi

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· The Adventures of Covenant Cove

· Stranger Lurking in the Shadows

· The Ultimate Guide to Living Longer and Feeling Younger: The Essential Nutr

· GANGS: How to Keep Your Children Away from Gangs, Drugs & Violence

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· A Love of a Lifetime


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Article Written By Jenna Martin, Senior Editor

The Epilepsy Project

Living life with epilepsy can be a colossal struggle. But, if you are Stacey Chillemi, it is a challenge and an opportunity to help others.


Stacey Chillemi is 32 years old, a mother of three, a wife and writer. Her journey and reason for being is defined each day by the happiness in her children’s eyes and the people with epilepsy she has helped through her writing. “Through this experience with epilepsy I have learned to accept my limitations and to change the way I look at things. Through my writing I am able to help others and just knowing I’ve helped is enough of a reward,” said Chillemi.

How it Began

At five years of age, Chillemi contracted encephalitis from what doctors’ surmise began as an ear infection. For four days she lay in a coma and doctors were unsure of whether she would suffer from paralysis as well as the extent of the brain damage. Fortunately, she recovered from her bout with encephalitis with no paralysis. However, she was left with epilepsy. Since her diagnosis, 27 years ago, Chillemi has had seizures ranging in severity from mild seizures in her sleep to tonic-clonic seizures.


Living with Limitations

As a mother of three and a woman with epilepsy, Chillemi is realistic about her limitations, “Having epilepsy and being a mom is difficult at times because I worry that if I have a seizure and I am unable to recover fast enough, that my kids will suffer,” said Chillemi. In fact, the entire time Chillemi has been a mother she has had only one tonic-clonic seizure resulting in serious injury. According to Chillemi, she was walking the dog with her children when she felt a seizure coming on. She immediately instructed the children to go inside and wait downstairs for her. Following the seizure, Chillemi realized she had suffered a head injury and reached out to a neighbor for help. After the tonic-clonic seizure Chillemi decided to write a children’s book, called “My Mommy Has Epilepsy”. Her goal was to help children understand epilepsy in an age appropriate way as well as to help dispel some of the fear she had witnessed her own children experience. “I don’t want my children to get nervous or to worry about my seizures and the tonic- clonic seizure really motivated me to write a children’s book to help them and other kids cope and understand epilepsy.”

She admits she is also limited by not being able to drive, but attributes her ability to ask for help when she needs it as one more lesson learned. “At first it was difficult to rely on other people to drive the children and me places. I felt bad asking family and friends. But, now I’ve accepted my limitations and accepted who I am.”

Wisdom for Women

Chillemi cautions women with epilepsy to monitor their stress level. “Don’t try to accomplish too much. Do as much as you can and remember to set realistic goals and to reward yourself each day.” She also believes that in order to live with epilepsy and maintain a positive attitude it is important to focus on one’s self. “ Don’t look at what other people can do, only focus on yourself and your abilities because if you constantly compare, then you are adding to your stress level, which leads to being more physically drained and ultimately leaves you open to experience more seizures.” She advises women with epilepsy to educate themselves about their epilepsy and believes knowledge helps alleviate stress as well, “Women need to consult with their doctor, but not rely on their doctor for all of their information. In order to really feel empowered it is essential to take the initiative to learn all you can about epilepsy.”

Chillemi is in the process of publishing several books including, “Epilepsy and Pregnancy”,which she coauthored with Dr. Blanca Vazquez, “My Mommy Has Epilepsy” and “Love of a Lifetime”. She has also published “Epilepsy You’re Not Alone”. For more information regarding Chillemi’s work please visit :

Web Site stacey's web

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Reviewed by Stephanie Sawyer 11/4/2004
I'm so proud of Stacey! As a fellow epileptic and one who has known the perils of seizures during motherhood, I can well identify.
I love Stacey's attitudes in regards to taking the initiative for one's own welfare. How true! Even tomorrow, I have an appointment with a neurologist, and I usually know more of my assesment than he does. And I love her understanding of the high need for education. We can only be on top of our future by staying educated. That is a great reason for my book Facing Me portraying brain surgery. Sadly, even today, wive's tales exits as are portrayed in my short story "Aftermath of a Seizure".
I'm so happy you are here telling this story and doing this work.
Watch out for Mike Henle, a new author publishing a work on brain surgery to overcome epilepsy. Our work is yet underway, and it takes our openess and courage to motivate the education of others.
Go, Stacey!
Stephanie S. Sawyer, author Facing Me

Books by
Stacey Chillemi

Beginners Tips for Horse Training: What Every Horse Trainer Should Know

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Stranger Lurking in the Shadows

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The Adventures of Covenant Cove

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How to Become Wealthy Selling Ebooks on the Internet

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Amazon, Barnes & Noble, more..

HOW TO BUY A HOME USING A VA LOAN: What Every Home Buyer Should Know

Buy Options
Kindle, Amazon, Barnes & Noble, more..

GANGS: How to Keep Your Children Away from Gangs, Drugs & Violence

Buy Options
Kindle, Amazon, Barnes & Noble, more..

The Ultimate Guide to Living Longer and Feeling Younger: The Essential Nutr

Buy Options
Kindle, Barnes & Noble, more..

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