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Connie Faust

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Member Since: Jul, 2006

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Blogs by Connie Faust

An Update on Esa
12/30/2009 7:54:04 PM
Esa's daddy, Blair, just posted an update on her eye exam that was this week.
I haven't posted any reports about little Esa for a while, and they have been good, so I thought it was about time to update everybody. Connie

****************************************************

from Blair:
i'm sitting here typing this entry with esa sitting right beside me so she is going to tell me what to write. she says " thanks for praying for me, cause i had anoder great report!!" she is just as stable as she was a year ago. so thank you so much for your continued prayers.

it was a weird morning for us though, we have met so many great people throughout our journey here at saint jude. 2 years ago we were in the icu hoping that esa would get well enough to breath without oxygen, and pain meds. it's been quite the life for us the past two years. we met a man and his daughter in the waiting room in our clinic. he asked what esa had, and we told him that she has retinoblastoma, and he pointed to his 7 year old daughter who had very short hair that was growing back in. he said "yep, i remember wednesday morning eye exams." so obviously i asked if she has retinoblastoma and he said she was diagnosed with retino when she was 4 months old, and when she was five she graduated to the survivors clinic, and a month later it turned into bone cancer. he told us that this is the natural progression of retinoblastoma. so she just got done with 11 rounds of chemo, and she had the bone in her leg from her hip to under her knee replaced with a prosthetic bone. i was robbed of my joy, and i was reminded that my life with esa is never going to be the normal parenting experience. i always knew that it was a huge chance that other cancer might come, but i never met anyone who has had secondary cancer after they have been cleared from the retinoblastoma treatment. so i'm putting it in God's hands, and just am praying so hard that he will rebuke her cancer, and keep her whole body free from this monster for the next 100 years.

so i will put my worry to the side for today, and i will enjoy this beautiful little girl who got a stable eye exam today. today the world is right for my little girl.

please pray for jacob carver you need to go to his caringbridge. his family didn't get very good news this morning and they have some major decisions to make. that is another reason why this morning so very different. i had so much joy for like 30 minutes, and then i saw jacob's dad, and i was taken back to when we were getting bad news, and my heart just ached for them. so please pray for that family.

i have a very funny story from yesterday. Dr. Scott was checking esa's belly. because of the chemo and everything else esa doesn't poop regularly without miralax. so Dr. Scott likes to check her belly. so he was pushing on it, and out came a stinker. Esa sat up really quickly and gave a very shy smile and said, "what happened?" maybe it's not as funny reading it, but she was so cute about it trying to play it off. "oh, what happened?"

anyway, thanks so much for your prayers, and we love all of you. we go back in 6 weeks.
**********************************************

I did look up Jacob Carver's page, and his eye cancer has flared up bigtime. They will try various treatments, and if they don't help, his mommy and daddy will have to decide whether his eye should be removed. Their names are Hartley and Rachel.

Blessings to each of you as the year 2009 fades into the distance, and 2010 makes its grand entry.

With love,
Connie



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More Blogs by Connie Faust
• Amy's Dilemma - Tuesday, January 21, 2014
• A Prayer by Max Lucado - Thursday, April 18, 2013
• Sandy Hook Comfort - Tuesday, January 08, 2013
• Remembering Mom's /Clothesline - Sunday, September 02, 2012
• Thinking about me, my health and the work I have to do - Thursday, July 05, 2012
• Cellmates -- The Madman of the Gerasenes - Wednesday, March 28, 2012
• My Little Sugar - Thursday, February 09, 2012
• One Sick Little Doggie - Saturday, January 28, 2012
• Aaron and me - Friday, January 27, 2012
• Too precious--MUST SHARE! - Monday, July 18, 2011
• Spring is on its way! - Sunday, March 13, 2011
• Beautiful word--Stable - Wednesday, July 07, 2010
• July update on Esa - Wednesday, June 30, 2010
• Esa Has A Problem - Tuesday, June 22, 2010
• Esa's Eyes Are Stable - Monday, May 24, 2010
• Esa's Update for May 18, 2010 - Tuesday, May 18, 2010
• Peter Cottontail's always busy! - Saturday, April 10, 2010
• It's all about family - Monday, March 08, 2010
• Family Concerns - Wednesday, February 10, 2010
• God's Training for His Special Forces - Tuesday, January 19, 2010
• In the prison of your circumstances - Tuesday, January 19, 2010
•  An Update on Esa - Wednesday, December 30, 2009  
• Connie Hinnen Cook's halloween advice - Tuesday, October 27, 2009
• Welcome Home, Elizabeth - Tuesday, August 18, 2009
• Day 315 for Elizabeth - Wednesday, August 05, 2009
• Precious Toddler Elizabeth Struggles to Get Well - Tuesday, August 04, 2009
• Improvement for Elizabeth - Saturday, July 18, 2009
• Elizabeth really needs prayer - Friday, July 17, 2009
• Finally a diagnosis for Elizabeth! - Wednesday, July 15, 2009
• Elizabeth Dunford Update - Saturday, July 11, 2009
• May's Anniversaries - Friday, June 26, 2009
• "Which Side Are You On?" - Monday, May 25, 2009
• Hallelujah and Thank You, Lord! -- Jason :-) - Wednesday, April 22, 2009
• Introducing Elizabeth Dunford - Saturday, April 04, 2009
• Where is our dear Bonnie? - Thursday, April 02, 2009
• Esa, Jason and now TAYA - Wednesday, March 25, 2009
• Portrait of a Christian - Wednesday, February 25, 2009
• Thank You, Jesus, for Esa's good report! - Wednesday, January 21, 2009
• Esa and Jason January News - Tuesday, January 20, 2009
• Sharp-shooter Jason In The Treestand - Tuesday, December 16, 2008
• Christmas time prayers for Esa & Jason & more - Tuesday, December 16, 2008
• Sharpshootin' Jason Zosh - Thursday, November 20, 2008
• Great Rejoicing and Thanks-giving! - Wednesday, November 19, 2008
• Yes! - Thursday, October 30, 2008
• Good News, Please! - Wednesday, October 29, 2008
• A BIG DAY FOR ESA - Tuesday, October 28, 2008
• How's Jason? - Wednesday, September 24, 2008
• WATCH FOR ESA ON TV! - Wednesday, September 24, 2008
• Esa Update/Jason Update - Wednesday, September 10, 2008
• ESA HAS SURGERY TODAY - Tuesday, September 09, 2008
• The Brave Little Soul by John Alessi - Friday, August 22, 2008
• News on The Babies - Thursday, August 21, 2008
• Esa's Chemo Started this week - Wednesday, August 20, 2008
• The Last Chemo--hopefully forever! - Thursday, August 14, 2008
• Never thought I'd go gaga over zucchini! - Monday, August 04, 2008
• The Computer Swallowed Grandma - Friday, July 11, 2008
• ESA - Good Day - Sad Family News - Friday, July 11, 2008
• Walking the tightrope - Thursday, June 12, 2008
• Righteousness - Friday, June 06, 2008
• Esa's toddler cousin--a tragedy - Thursday, June 05, 2008
• from Mom to Grammy in 9 easy steps, er, months, that is. - Saturday, April 05, 2008
• When you're tired, write about the weather and the grandchildren - Saturday, February 09, 2008
• Speaking of angels........ - Monday, November 19, 2007
• Women of Hope Eat In - Friday, August 24, 2007
• I'll Keep On Shining! - Tuesday, June 12, 2007
• What God is accomplishing with my poetry - Saturday, June 09, 2007
• Moving On -- My Favorite Things Last Verse - Saturday, May 05, 2007
• Oh, those neighbor kids! -- My Favorite Things, Part Four - Saturday, April 28, 2007
• Does Mother Miss Me? - Friday, April 20, 2007
• Round The Neighborhood--My Favorite Things Part Three - Wednesday, April 18, 2007
• Bird in the attic--My Favorite Things Part 2 - Thursday, April 12, 2007
• My Favorite Things--Part One - Sunday, April 08, 2007
• Sugar Plum - Sunday, February 04, 2007
• Cooking The New Year In - Monday, January 01, 2007
• Psalms and "Problems" - Monday, December 04, 2006
• Why should He not bruise me? - Saturday, December 02, 2006
• Fall Fun Day - Saturday, October 14, 2006
• Blog, What blog? - Saturday, October 07, 2006


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