Blogs by Connie Faust
Aaron and me
1/27/2012 1:58:00 PM
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Update my blog? Well, fancy that! I'll write about our Aaron! What a guy!
Aaron is on the computer phone right now. He's 16 now, and knowledgeable about all things computer. I am not.
Aaron thinks I need to keep my blog more up to date, so I get more traffic.
Aaron is so cool! When he was born, he weighed just under 2 lbs. Now he's a nice, chunky boy.
It seemed like we held our breath for months, waiting to see how Aaron would grow and develop.
At first, it was all touch and go. Would he be able to hear? Would he have sight? (His eyes weren't open yet, but were still sealed tight) So tiny, this little bit of humanity. So fragile, we weren't allowed to hold him for awhile.
Strange, but true, his first time to pee was exciting! It worked--yay! And so it went.
Surgeries were common from the beginning, but nonetheless frightening. Pace the hospital corridors, slouch for a while in the waiting room.....pray, pray, pray.
Our boy struggles with walking, but he's a trouper. What a privilege to know Aaron!
He just sent me a short chronicle written by his mom, my daughter Carol:
14 yrs ago on Novemeber 27th, Aaron was born. He was 3 1/2 months early.
He weighed 899 grams and was 12 inches long.
His lungs were so premature that his first breath shattered them, they weren't ready for oxygen.
His chance of survival was so low that they couldn't give us a number.
He was so small that my size six ring fit over his hand and up to his shoulder.
He was on a ventilator for months, had an arterial feeding line, oxygen..
He suffered level 3 brain damage on one side and level 4 with seepage around the brain on the other side.
His first surgery was on his second day of life and he has had a dozen since then.
He was so premature and fragile that we couldn't hold him for nearly a month. On christmas his Dr's gift to us was to allow us to hold him for just a few moments and then it was back to weeks of not holding him.
He spent 3 months in ICU and then he came home for a few days, and then back in because he stopped breathing.
Over the next few years he had many surgeries, on his eyes, stomach, to repair hernias.
And he had bout after bout of pnemonia, each one meaning weeks in the hospital. I actually felt more at home at the hospital then in my own home.
And then came the drop seizures. Hundreds per day. It was like a big hand coming from the sky and smashing him face first into the floor. He had scans done and they said by the time he was 7 or 8 he would have several kinds of seizures as well as his drop seizures.
He was so doped up but nothing stopped them from coming.He spent a few years dealing with them and then one night he got a high fever.. and that was the last night he had a seizure. Dr's don't know why they stopped, eventually he was weaned off of the meds and they never came back.
They told us he would never walk, never talk, never eat on his own even. He would in essence, be a vegetable (tho they didn't use that word).
For the first seven years, Aaron struggled to live .. I can't even begin to remember all the times that we thought this was the end, his last illness, his last surgery, his last day with us...
His last bout with pnemonia, he was seven years old. It was so bad.. I remember the very moment they told us maybe his family and friends should come say their goodbyes.
Everyone came, even my older son's teacher came and sat with us. His favorite Dr came, though he was no longer Aaron's Dr. He brought in this huge bigbird that Aaron had loved.
And then, out of the blue, Aaron turned the corner and he came back to us. So tiny and frail, but determined to live.
And that was his last fight with pnemonia. He never had it again, much to everyone's surprise.
I can't even begin to tell you all of Aaron's story, it would take a novel and more.
He struggled to learn to eat (that took years and he had a tube in his tummy back then), he struggle to talk and learned to sign first, he struggled to walk and didn't walk unassisted until he was 5 or 6...
but through it all.. even in his darkest hours, he shines.
People have told us over and over again that he has touched them, even people he's met for a just a few moments have told us they feel blessed to have met him. In him, they find hope ... and laughter..
They tell us he is a joy and a precious little soul ..
Today Aaron is nearly 14 yrs old. He has cerebral palsy, aspergers, mental delays. He still struggles with certain illnesses and often is on antibiotics, breathing treatments, and steroids..
He now uses a wheelchair for any distance over 1/4 of a mile.
But he has overcome so much, so many things they said were never possible..
He walks short distances, he talks ( too much! lol), he plays and laughs and goes to school..
He has an amazing sense of humor and so much compassion and love..
He is a true miracle.. my miracle..
More Blogs by Connie Faust
Amy's Dilemma - Tuesday, January 21, 2014
A Prayer by Max Lucado - Thursday, April 18, 2013
Sandy Hook Comfort - Tuesday, January 08, 2013
Remembering Mom's /Clothesline - Sunday, September 02, 2012
Thinking about me, my health and the work I have to do - Thursday, July 05, 2012
Cellmates -- The Madman of the Gerasenes - Wednesday, March 28, 2012
My Little Sugar - Thursday, February 09, 2012
One Sick Little Doggie - Saturday, January 28, 2012
Aaron and me - Friday, January 27, 2012
Too precious--MUST SHARE! - Monday, July 18, 2011
Spring is on its way! - Sunday, March 13, 2011
Beautiful word--Stable - Wednesday, July 07, 2010
July update on Esa - Wednesday, June 30, 2010
Esa Has A Problem - Tuesday, June 22, 2010
Esa's Eyes Are Stable - Monday, May 24, 2010
Esa's Update for May 18, 2010 - Tuesday, May 18, 2010
Peter Cottontail's always busy! - Saturday, April 10, 2010
It's all about family - Monday, March 08, 2010
Family Concerns - Wednesday, February 10, 2010
God's Training for His Special Forces - Tuesday, January 19, 2010
In the prison of your circumstances - Tuesday, January 19, 2010
An Update on Esa - Wednesday, December 30, 2009
Connie Hinnen Cook's halloween advice - Tuesday, October 27, 2009
Welcome Home, Elizabeth - Tuesday, August 18, 2009
Day 315 for Elizabeth - Wednesday, August 05, 2009
Precious Toddler Elizabeth Struggles to Get Well - Tuesday, August 04, 2009
Improvement for Elizabeth - Saturday, July 18, 2009
Elizabeth really needs prayer - Friday, July 17, 2009
Finally a diagnosis for Elizabeth! - Wednesday, July 15, 2009
Elizabeth Dunford Update - Saturday, July 11, 2009
May's Anniversaries - Friday, June 26, 2009
"Which Side Are You On?" - Monday, May 25, 2009
Hallelujah and Thank You, Lord! -- Jason :-) - Wednesday, April 22, 2009
Introducing Elizabeth Dunford - Saturday, April 04, 2009
Where is our dear Bonnie? - Thursday, April 02, 2009
Esa, Jason and now TAYA - Wednesday, March 25, 2009
Portrait of a Christian - Wednesday, February 25, 2009
Thank You, Jesus, for Esa's good report! - Wednesday, January 21, 2009
Esa and Jason January News - Tuesday, January 20, 2009
Sharp-shooter Jason In The Treestand - Tuesday, December 16, 2008
Christmas time prayers for Esa & Jason & more - Tuesday, December 16, 2008
Sharpshootin' Jason Zosh - Thursday, November 20, 2008
Great Rejoicing and Thanks-giving! - Wednesday, November 19, 2008
Yes! - Thursday, October 30, 2008
Good News, Please! - Wednesday, October 29, 2008
A BIG DAY FOR ESA - Tuesday, October 28, 2008
How's Jason? - Wednesday, September 24, 2008
WATCH FOR ESA ON TV! - Wednesday, September 24, 2008
Esa Update/Jason Update - Wednesday, September 10, 2008
ESA HAS SURGERY TODAY - Tuesday, September 09, 2008
The Brave Little Soul by John Alessi - Friday, August 22, 2008
News on The Babies - Thursday, August 21, 2008
Esa's Chemo Started this week - Wednesday, August 20, 2008
The Last Chemo--hopefully forever! - Thursday, August 14, 2008
Never thought I'd go gaga over zucchini! - Monday, August 04, 2008
The Computer Swallowed Grandma - Friday, July 11, 2008
ESA - Good Day - Sad Family News - Friday, July 11, 2008
Walking the tightrope - Thursday, June 12, 2008
Righteousness - Friday, June 06, 2008
Esa's toddler cousin--a tragedy - Thursday, June 05, 2008
from Mom to Grammy in 9 easy steps, er, months, that is. - Saturday, April 05, 2008
When you're tired, write about the weather and the grandchildren - Saturday, February 09, 2008
Speaking of angels........ - Monday, November 19, 2007
Women of Hope Eat In - Friday, August 24, 2007
I'll Keep On Shining! - Tuesday, June 12, 2007
What God is accomplishing with my poetry - Saturday, June 09, 2007
Moving On -- My Favorite Things Last Verse - Saturday, May 05, 2007
Oh, those neighbor kids! -- My Favorite Things, Part Four - Saturday, April 28, 2007
Does Mother Miss Me? - Friday, April 20, 2007
Round The Neighborhood--My Favorite Things Part Three - Wednesday, April 18, 2007
Bird in the attic--My Favorite Things Part 2 - Thursday, April 12, 2007
My Favorite Things--Part One - Sunday, April 08, 2007
Sugar Plum - Sunday, February 04, 2007
Cooking The New Year In - Monday, January 01, 2007
Psalms and "Problems" - Monday, December 04, 2006
Why should He not bruise me? - Saturday, December 02, 2006
Fall Fun Day - Saturday, October 14, 2006
Blog, What blog? - Saturday, October 07, 2006