Blogs by Denise Love Contreras
Special News Letter
3/13/2007 4:00:08 PM
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Hi everyone this is what I put in a special News letter not dealing with Authrosden. I thought I would also put it in my blog to share with everyone.
I wanted to share with you what I and many others are doing so please read and pass on to others even those who do not have Lupus you can still write about friends or loved ones I don't have support from my family well yes I have it from my husband thank God he supports me so much and loves me.
I am sending this out to all of you, maybe you can take some time and write if you do not know anyone who has Lupus you can write that you know me share that you have a friend I do not care if you use my name or not I hate to ask but we need to let more people know about Lupus and support the Lupus foundation, so we can get message out about how serous Lupus is they make a big deal of cancer and other diseases but they seem to forget about Lupus and this is a disease that can kill because some of us do not look sick does not mean were healthy some of us are dieing and if you were to meet us we look healthy. Since I was diagnosed with Lupus in 2004 I have known people online who have died from Lupus it is serous disease. Young and old alike can get Lupus it can attack anyone at any time male or female yes it seems to get women more often but even men can get it and it seems that when men get it they tend to get it even more painful.
So please take this serious and if you can make the time to write please in the link below there is a page to go to and it will tell you where to write to and you can sign up for the news letter so you can see what we will be doing each week.
Please read below:
We are announcing a Lupus Awareness Media Campaign. We are starting a campaign to try to get some media attention for Lupus Awareness. Every week we will be picking a Television show, newspaper, magazine or radio show asking them to do stories/segments on Lupus. We will post our letters and the contact information for the media outlet we have chosen for that week. We ask all of you to write to these outlets as well.
The more letters they get, the more serious they will take us and the more likely they are to do the stories. Many of us have written these emails before, but if we coordinate so that they get hundreds of letters in the same week, maybe they will pay attention! You can write one letter and save it on your computer and send the same one to each media outlet. Or, you can do what we will be doing and have a basic letter that you can customize to each show, etc.
New picks will be posted every Friday. To see the picks or have them emailed to you weekly, visit http://cure4lupus.org/media_campaign.htm
Much of what we know about lupus (systemic lupus erythematosus, or SLE) comes from studies of people who have a severe form of lupus. However, doctors now identify milder lupus at earlier stages. Combined with newer treatments, earlier diagnosis improves treatment outcomes and overall survival rates.
The course of lupus varies by individual and is hard to predict, because symptoms come and go. Lupus usually develops so slowly that a person may not notice the symptoms for a long time.
Periods of time when you have lupus symptoms are called flares or relapses. Periods of time when your symptoms get better are called remissions. On occasion lupus develops and progresses rapidly. Flares and remissions can occur abruptly, unexpectedly, and without clear cause. There is no way to predict when a flare will happen, how bad it will be, or how long it will last. When you have a lupus flare, you may have new symptoms in addition to those you have had in the past.
Children can get lupus, though it more commonly develops in the teen years. Lupus in children appears to be more severe than in adults when vital organs, such as the kidneys and heart, are involved. This may be due to age-related differences in the disease, a child's stage of development, or differences in access to treatment.
People with lupus commonly lead a less active lifestyle than do people who do not have lupus, due to the fatigue, joint pain, and rashes caused by the disease.
Just to fill you in if anyone uses me as the person you know who has Lupus
I was diagnosed in 2004 at the age of 39 I was in a wheel chair and was not able to walk and I stopped working in November of 2003 that was when I woke up and could not walk I applied for ssd in November of 2003 did not have insurance and did not know what was wrong with me from going to doctors to doctors I found out in August of 2004 that I had FMS and Lupus. I fought to get on SSD and in 2006 I was accepted on SSD thank God.
I used to be a dancer, of ballet and Jazz and was very much in shape through the years the pain got worse and worse and I did not know what was wrong being young and dumb plus not having insurance I did not go to many doctors so now I am paying for meaning I have Lupus and I don't walk well and always in pain.
Lupus and FMS is affecting me thank God it has not affected my organs Lupus can affect the organs it just has affected my muscles and joints and causes me to not walk good it has affected my memory and I get infections often, I live in lots of pain I go to doctors often the last 6 months I been there every few weeks at a different specialist I am not sending this to you to feel bad for me I am sending this to you to fill you in about what Lupus has done to me. So if you do choose to write then you will know more about how it has affected me.
I am mainly home bound and I am dealing with it I have my up and down days I don't have many friends accept for you on line who I communicate with that is why I am sending this to you all.
I am basically saying this so maybe this message will get to some people about what Lupus can do to people to read more stories of other people who have it way worse then I do go to google search or yahoo search and type in Lupus personal stories and you will have a bunch of stories that will come up. There are people dieing of this disease daily children and mothers wife's fathers it is not prejudice it can affect anyone of us. So please I ask maybe I am asking to much but please read this and write. Every week we will be having another place to write to so please join us in doing so to support each other.
Thank you so much for taking time and reading.
Hugs Angela Contreras
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Sharing my daily menu from December 29 throught January 5 - Tuesday, January 06, 2009
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Update on my health and why I have not been around as often. - Friday, January 02, 2009
Went to the Telethon - Monday, September 03, 2007
Weight - Monday, August 20, 2007
Total Loss is 53 pounds - Thursday, May 03, 2007
Still loosing weight - Sunday, April 15, 2007
Got home from Hospital March 2007 - Thursday, March 22, 2007
Lost 32 Pounds - Thursday, March 15, 2007
Special News Letter - Tuesday, March 13, 2007
Valentines Day - Wednesday, February 14, 2007
Changing the way I eat. - Wednesday, February 07, 2007
My Dear Friend - Sunday, February 04, 2007
The best thing that happened in my life. - Sunday, January 21, 2007
Getting Married 1/14/2007 - Wednesday, January 10, 2007
Happy New year - Monday, January 01, 2007
Just got home from the Hospital - Saturday, November 04, 2006
Sharing more with you - Saturday, September 16, 2006
Welcome - Wednesday, September 06, 2006