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Mary Lou Connolly

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Member Since: Feb, 2006

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Blogs by Mary Lou Connolly

The Great Humanizer
2/26/2009 2:46:12 PM    [ Flag as Inappropriate ]

So often we think that the powerful politicians around us "just don't get" what we're going through. Well, Britain's Conservative Leader sure knows what it's like to have a severely disabled, chronically ill child. Now, sadly, he has experienced the loss of his beautiful son Ivan.

The NY Times article published today,"Son's Death Recasts Image of a British Leader", came to my attention via another epilepsy board member. I was struck by the tone---so respectful, sensitive, and (I'm struggling to find the right word) meaningful, YES, meaningful. Little Ivan Cameron died of an episode related to a rare seizure disorder which rendered him disabled in many routine activities of daily living. What Ivan did not lack during his all too brief life, was the ferocious love and devotion of his parents. The article speaks about the Conservative leader and his wifesleeping on the floor of Ivan's hospital room so he would not be alone. It was a story reminiscent of some I know too well--Sarah never leaving Jake's side at the Cleveland Clinic after he had dramatic brain surgery to try to get his seizures under control; the dear woman in the room next to Michael's last summer whomaintained vigil over her 40 year old son who had a shotat "normalcy" if he qualified for a particular surgical procedure; Barry,my husband,always assuming the night shift during Michael's hospital stays, and putting in a full day's work once his "shift" was over. Devoted all---not so differentreallyfrom David Cameron. I hope the Camerons find peace eventually in their memories and in the knowledge that they gave their son all they had. AND, they have educated a country in the process about the personal, financial and health care resources needed to care for a chronically ill child; but more importantly, they have epitomized the exquisiteness of parental love.



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More Blogs by Mary Lou Connolly
• Why I Joined - Saturday, May 23, 2009
• People Die from Epilepsy - Saturday, April 25, 2009
• See My Blogs - Thursday, April 23, 2009
• Epilepsy in the News - Thursday, April 16, 2009
• News - Thursday, April 02, 2009
• Announcement - Saturday, March 21, 2009
• What's the Message? - Friday, March 13, 2009
• A Blessing? - Friday, March 06, 2009
•  The Great Humanizer - Thursday, February 26, 2009  
• No Surprise - Saturday, February 21, 2009
• Bless You Susan Axelrod - Sunday, February 15, 2009
• Good Morning - Sunday, February 01, 2009
• Could it be the weather? - Saturday, January 31, 2009
• Damn! Another one. - Friday, January 23, 2009
• Seizures in the Headlines - Tuesday, January 20, 2009
• Katie the Seizure Dog - Sunday, January 18, 2009
• Travolta tragedy - Saturday, January 10, 2009


Living on Sisu: The 1913 Union Copper Strike Tragedy by Deborah Frontiera

First Place Winner in historical fiction in the Purple Dragonfly Awards for excellence in children's literature. Feel like you are in the moment nearly 100 years ago with a yo..  
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