Blogs by Christine Tsen
Aspiness to Happiness
8/12/2012 1:49:50 PM
It can be a heart-wrenching journey for the forgotten ones xx
Aspiness to Happiness
My benefit efforts this year, musical performance and otherwise, will center on raising awareness for Aspergerís Syndrome. It is clear to me that these autistic children and adults are precious yet misunderstood. The children and adults, particularly the girls and women, with this are in need of spokespeople, advocates and teachers who value and strive to understand them. They are in essence the forgotten ones.
I call them Forgotten because people with Aspergerís are at the high-functioning end of the autism spectrum, and their situation may go undiagnosed for many, many painful, lonely years, perhaps well into adulthood. In particular, girls are frequently forgotten because they tend to compensate better for the traits that Aspergerís brings and are diagnosed much later. This is the case with my daughter. Sheís beautiful, bright, talented, articulate, and a whiz in both arts and sciences. While she was uncomfortable in social situations, she had the grace and patience to muddle through them, even managing to come off as charming.
Privately, however, she was in torment. I have only recently learned the extent of her pain, and the social trauma she has suffered for years in school. The experience, as we found out recently at an Aspergerís information conference at Cape Cod, is similar to simultaneous stimulations from paper scraping her skin while several people are barking at her. And synthesizing her experience into words is not something she can easily do. It is all she has known. How does one describe the color Lavender to a blind person? Or, as she would put it, how does one describe the mechanics of tree climbing to a slippery fish? Her eyes, of course, would be rolling all the while. As it turns out, being an Aspie does not preclude her from the universal teen eye-roll as she educates her familial inferiors.
This year it is my intent to help this cause, and to grow closer to my daughter on her level. This is a journey for the both of us. For those who are ďNeurotypicalĒ (NT, people who do not have Aspergerís), reaching an Aspie can be like setting off on a labyrinthine quest with riddle-bearing sphinxes at every turn. Music, as it turns out, is a language common to both Aspies and NTs alike. I want to find ways to get closer to my daughter, and in doing so to become an advocate for all girls and women with Aspergerís. I hope with all my heart to bring both our worlds together.
More Blogs by Christine Tsen
To Valinor - Sunday, February 24, 2013
Attraversiamo - Sunday, December 30, 2012
Thankful - Thursday, November 22, 2012
Detours - Wednesday, October 24, 2012
Sacrifice - Monday, October 08, 2012
Soulful Thinking - Tuesday, October 02, 2012
Aspiness to Happiness - Sunday, August 12, 2012
A collage of my father. - Monday, March 26, 2012
Tea Talk - Saturday, February 04, 2012
Agape - Monday, January 16, 2012
Spatial Musings - Thursday, December 01, 2011
Spiritual Leeks - Sunday, September 25, 2011
Existential - Wednesday, July 13, 2011
Mona Lisa - Friday, May 20, 2011
No Matter What - Monday, May 16, 2011
Firestarter - Sunday, May 08, 2011
Happiness - Tuesday, April 26, 2011
Indigo - Saturday, April 23, 2011
Friendships - Friday, April 22, 2011
Ocean Currents - Monday, April 18, 2011
Elementals - Saturday, April 16, 2011
Grace - Thursday, April 14, 2011