Epilepsy You're Not Alone: A Personal View On How To Cope With The Disorderby Anonymous
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October 07, 2006: I just wanted to write to you and let you know how much you have inspired me. My daughter bought me your book, 'Epilepsy Your Not alone.' You wouldn't believe all the highlighting I've done in it. It only took me 2 days to read. In my town in OKLA. Or anywhere close. It is hard to find any support groups. So I decided to start my own with the help of the Epilepsy Assoc. of OKLAH. I worked as a LPN for 15 years. I was very involved in my children's activities. Never missed their functions. I was diagnosed in Jan of 2004n and have found this very difficult after being so independent, I have tried about 6 different meds just minimal help, and side effects are terrible. Two of my EEG was normal I have had 5 convulsions and once even thought about taking my life. I thought it would make things easier on my family, (expenses, taking care of me etc...) I have been in and out of the hospital People always asked what caused them. And I can't give them an answer. At this point I would just like them to get them under control. I would like to feel needed instead of me needed every one else?s help so that's were starting a support group came in. I wanted to get information to others just as much as receiving it. At some point in time I would like to be a speaker so the people in our community will understand more. It is really needed here. One time I had an aura by the mailbox. The cars kept driving by. Finally a car stopped because he thought I might have been run over. (Bless him) At 45 years of age and have worked since 14 I am going stir crazy. My family has been very helpful. But don't really understand. Thank you for writing the book.