I'm very busy raising an eight year old grandson who has cerebral palsy and is blind in one eye.
I'm editing several novels and have completed two illustrated poetry books. Currently I'm looking for interested publishers.
Would love to keep in touch with everyone who enjoys my poetry but there is never enough time. If you'd like updates on what's going on, you'll find it here.
Newsletter Dated: 9/9/2003 2:50:01 PM
Subject: Sandy's Chatterbox
Yesterday and today it's been raining. It's helping to put the fires out all around us so that's great. I used to love listening to the pitter-patter of rain on the metal roof over our porch. Alas, the house is gone now and I can hear nothing. Still get a kick out of watching it and walking in a light drizzle.
We received a letter from Dr. Lauer, Doogie's eye surgeon on Saturday. It caught me a bit unaware. We realized that Doogie's right eye isn't going to improve but there was new information: 1) Doogie's left eye can no longer see light, everything is totally black and 2) it's expected that Doogie's right eye will continue to deteriorate to that point as well though we have no idea WHEN that will happen.
Not the news we were hoping to receive, I assure you but it wasn't until today that we cried about it. We didn't dare touch one another lest the dam break . . . and that wouldn't be good. We still have hope, still believe 'someday' it might be reversible, but, until that time we have to deal with the reality that Doogie is rapidly losing ALL of his vision.
The world is changing so rapidly around us . . . and now it's changing so rapidly in our household.
Just as the clouds will drift aside and the rain pass, so will we adapt. Doogie is aware of the prognosis and, in his own way, dealing with it . . . still not complaining.
When it's dark and he can't see to walk in the hall to his bedroom, we play choo-choo train. I'm the engine and he's the caboose. Always, the caboose runs the engine off the track . . . silly caboose on the loose :)! He's better at identifying things with his hands and loves having me 'guess' what or who it is--I foolishly come up with the sillest guesses. We laugh, play and, in the back of our minds, store our worries for another day.
I've been posting 'old' poems from my files, remembering the recent past before Doogie's right eye was in jeopardy. We've aged, I think, since then but, thankfully we haven't forgotten how to laugh, smile or make jokes.
We will be taking Doogie back to his pediatric gastroendoctorenologist for a liver check-up later this week. Hope all is well there.
His white-tipped cane should be arrived any time now; he's using a old loner from his blind teacher. It's exciting--Doogie calls it his 'third eye' :)--and we've been discussing getting a 'seeing eye' dog. I'm allergic to animal dander and throw up when I breathe it in so we're going to wait a while on the dog :)!
Thanks for all your support, your birthday wishes this past week (to those who didn't know it was my birthday--thanks for NOT acknowledging another year . . . perhaps I can still be 25 ;), and your prayers.
Doogie is an exceptional nine year old! What he has gone through would cause many adults to go nuts :)! I'm grateful for his presence, laughter, love, trust and just being himself.
Love you all. Take care and be at peace.
**My den door is always open, write if you like but be forwarned if you come in and there's steam seeping out from under the bathroom door :)!
The new pastor was visiting the homes of his parishioners. At one house, it seemed obvious that someone was home but no one answered his repeated knocks at the door. He took out a card, wrote “Revelation 3:20” on the back and stuck it in the door.
When the offering was processed the following Sunday, he found that his card had been returned. Added to it was this message: “Genesis 3:10.”
After consulting his Bible, the pastor burst out laughing.
Revelation 3:20 reads, “Behold, I stand at the door and knock.”
Genesis 3:10 reads: “I heard your voice in the garden, and I was afraid, for I was naked.”