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Karen Lynn Vidra, The Texas Tornado

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Johnathon's Jottings, March 26, 2009: The Truth About Me And My Health.
By Karen Lynn Vidra, The Texas Tornado
Thursday, March 26, 2009

Rated "G" by the Author.

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Johnathon writes about his recent hospitalization, where he went into congestive heart failure. (He's now doing much better; the CHF seems to have resolved itself for now; however, it has him thinking of his own mortality.)

Thursday, March 26, 2009, Nashville, TN., 6:39 a.m., C.S.T.~

Dear Journal~

Johnathon here.  I thought I'd write to you to let you know what is really going on with me.

Remember the last few times I wrote, when I said I'd had the flu, and it really knocked the stuffin' out of me?  Well, it turned out I had a spell of congestive heart failure.  I ended up in the hospital for a week and a half. 

I was having swelling in my feet and ankles (they looked "puffy", liked overstuffed pillows), and it was getting harder for me to breathe.  Maman took me to the doctor; he popped me in the hospital, where I endured endless sticks and IV's.  I also had to be hooked up to a ventilator so I could breathe easier; that wasn't fun.  I also had to have a nose hose.  EWWW!

It was discovered I had congestive heart failure.  My heart was working harder than normal to get oxygen pumpin' throughout my body. 

I'm now being monitored by my pediatrician, Dr. Emmons, and my MD team; they said this was a result of my disease.  I would probably have more episodes like this in the future; it means that my disease is progressing.  Oh, goodie.  Just what I did NOT want to hear!

I'm now on medications to help my heart, in addition to alllll my other meds I take for my breathing, pain management, epilepsy, etc. 

I really have to be careful now; there's no telling when I will have another spell with my heart, or how fast I will go downhill.  I pray I am around for a long time to come; if not, then that's okay, too, because I will soon be with Jesus, in Heaven, and I will have a new body:  I will be able to run footraces with the angels and talk to Jesus about how glad He saved me and made me whole again when I got to Heaven.  :)

I do know this:  I seriously need some new clothes.  Most of what I have hangs on me; I look like a beanpole.  Skinny ain't the word!  My face looks like a skeleton; when people see me, they get sad or act worried.  It's only natural; however, it bothers me.

When I am around people, I want them to treat me normally, even though my life is anything but.  Don't act all tragically sad around me; I may be living with an incurable, progressive disease, but I'm a lot stronger than my outer appearance seems to project!  Treat me like a normal kid; get to know me, and listen to what I have to say!  That's all I want!

Well, I have to get ready to go to school; bus is coming soon.  I will write in here again when my health allows it; hopefully that won't be too long in the future!  Just keep those prayers coming; I'd really apreciate it!  Thanks in advance!

Take care and God bless!  Love you all~

~Johnathon.  :)


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Reviewed by Georg Mateos 3/28/2009
Johnathon is my kind of hero, he will bend but not break. Children are more resilient than adults, and cope with pain with much more courage than waining adults!


Reviewed by Paul Berube 3/27/2009
Nicely written Karen.
Reviewed by Cindy Tuttle 3/26/2009
This is such a great story. Johnathon is handling things much better than I would I am sure. What a brave little guy.Thanks or writing this Karen.

With Love,
Reviewed by Michelle Kidwell Power In The Pen 3/26/2009
Another amazing story, Jonathon is a fighter that is for sure
In Christs Love
Reviewed by Flying Fox Ted L Glines 3/26/2009
Bless Johnathon!!! What a mess for a kid to go through. I don't know if this is good news or bad, but the CHF is unlikely to kill him. It is the side-effects which are slowly progressive. Patty has had CHF since she was born, 51 years ago. The CHF behaves just like it did when she was a girl. Shortness of breath, night-sweats, water-retention, and none of it is fun. The progressive side of it is because the CHF produces an imbalance in blood/oxygen supply to all of the body's organs, and Johnathon will probably be in and out of clinics/hospitals all during his life as doctors strive to re-balance his system chemically, as the needs of his system changes. For some reason, diabetes seems to be fairly common among CHF victims, so this should be watched closely. Our blessings and prayers surround him :-)

Reviewed by Carole Mathys 3/26/2009
I am glad that he is feeling better and is back home with his family, that always lifts up one's spirit...excellent writing
peace and love, Carole~
Reviewed by Sandie May Angel-Joyce 3/26/2009
Another day into the life of Johnathon. There are some sadness within this write, but this is well written. Great job, Karen!!!

Sandie Angel :o)
Reviewed by Rose Rideout 3/26/2009
This is a sad write but Johnathan seems to be very strong in his spirit and faith and I pray he will give us more enjoyment. Thank you for sharing.

Newfie Hugs are on the way, Rose
Reviewed by Linda Zebsokey 3/26/2009
This is a sad write. I hope too that Jonathon will be around for a long time. Well done Karen.

Reviewed by Karla Dorman, The StormSpinner 3/26/2009

I hope Johnny will be around for a long, long time. He is probably my very favorite character of all the millions you write about. =] Love his attitude and faith in Christ. =] We should all learn from young Johnny. Well done!!

(((HUGS))) and love, Karla.

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