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Stacey Chillemi

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· Epilepsy You're Not Alone

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Books by Stacey Chillemi
The Reasons I Wrote Epilepsy You're Not Alone
By Stacey Chillemi
Posted: Wednesday, July 28, 2004
Last edited: Friday, April 15, 2005
This short story is rated "G" by the Author.
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Recent stories by Stacey Chillemi
· Stranger Lurking In the Shadows
· Tish’s Story
· Living With Epilepsy
· Trish’s Story
· Mike's Story
· Shirley's Story
· Jane Gillespie Story
           >> View all 30
Just because you have a disability or illness does not mean lives ends. Your life has just begun!

I have epilepsy for twenty-three years. Between my background and experience interviewing hundreds of "wonderful epileptic individuals" has taught me that so many people that have this disorder feel so alone.

My aim is to educate people about epilepsy and to show individuals who have the disorder how to live with epilepsy, empowering them to take responsibility for their life and well-being.

I have written a book called "Epilepsy You're Not Alone." The book motivates epileptics, urging readers to acknowledge that there is a deeper level of human experience that is necessary in order to live with epilepsy.

I have also had articles written about my book and my personal experience coping with epilepsy. I also was on News 12 on the 15th of January. I was interviewed by Della Cruz and I have written articles for newspapers.

My goal is to teach people with epilepsy how to build the inner power to do anything or become anything they want in life. My approaches for dealing with epilepsy will show people with the disorder how to reform a better direction in their everyday life of living and dealing with their disorder. These techniques will also be valuable to friends and family members who know someone with the disorder.

The program I have created will help people with the disorder so they can build confidence in themselves. Once they establish self-assurance, the reader will start to see their inner strength boost. When one quality improves, all their other attributes will enhance also.

The book I wrote will give them the tools to learn how to incorporate epilepsy into their life so the reader can live with the disorder on a positive note. The reader can make life anything they want if they have positive goals to focus on and if they have a good understanding of how to approach them.

This book gives the reader the materials they need to gain encouragement and strength to overcome having epilepsy and being able to live life to its fullest. In the book, I want to be able to focus on certain topics related to epilepsy that not many have discussed. One of my main goals in this book is to help the reader recognize that life has much to offer. Life does not have to cease just because you have epilepsy. As I mentioned earlier, in this book we will be discussing what people go through emotionally when they have epilepsy. We will be going over different ways to help the reader emotionally, physically and spiritually.

Many people, who have written to me, have given up their goals and expectations in life. Their attitude about life is very negative. Many people have given up because they feel they have too many limitations and restraints. Countless individuals who suffer from epilepsy think that they can never accomplish their goals and dreams in life, but I am here to tell you that this is not true .

My aim is to show people with epilepsy how to live with their disorder, empowering them to take responsibility for their life and well-being.

Although I acknowledge how other epileptics feel living with epilepsy - I stress that there is a deeper level of human experience that is necessary in order to live with epilepsy. Unlike other books on epilepsy, Epilepsy You're Not Alone does not focus on the same subject matter. Instead it tries to motivate epileptics, urging readers to create their own unique journal by employing psychological and spiritual practices in combination with a variety of more traditional diet and exercise regiments.

While seemingly revolutionary, my message is simple: It is important that epileptics learn how to live with epilepsy and endure it. Everything you do and say affects the people around you.

Eventually if epileptics do not learn how to deal with all these issues, they could end up really destroying themselves emotionally, physically and spiritually. One way to prevent this from happening is to develop a lifestyle that is suitable for your own needs.

The people who have epilepsy need to make sure that it is a lifestyle that is going to make them happy over time. They need to be their own designer, creating pathways to a fulfilling future. There is a whole world in front of you. This world has millions of opportunities just waiting for you to encounter. It does not matter what age you are. You can achieve anything you put your mind too.

Epilepsy affects millions of people worldwide, with more than two million people in the
United States suffering from the disorder. It is estimated that epilepsy occurs ten times more frequently than multiple sclerosis and 100 times more often than the motornueron disease. Statistics show that one out of twenty people will have at least one epileptic seizure once in his or her life. One out of 200 will ultimately develop full-blown epilepsy. According to the Epilepsy Foundation of America the causes of 70 % of all cases of epilepsy are unknown.

Individuals of all ages suffer from epilepsy and seizures. Epileptics are not the only ones who suffer, family and friends also suffer. How would you feel if you walked into the house to find the one you loved or felt close to on the floor with their eyes rolled back and their body shaking uncontrollably? It's something you don't want to experience.

These individuals are yearning to learn more about the disorder that is disrupting their life and they are unable to do it because most existing books on the market approach the subject from the physician's point of view. There is little emphasis made on showing epileptics that changes can be made to live positively with epilepsy.

Epilepsy You're Not Alone will be a 200 page book targeted for individuals who have epilepsy. Unlike other books on epilepsy, it will focus on the facts of the connection between the mind, body and spirit as it relates to epilepsy, showing readers how to use that connection to cope with epilepsy. The book will be written in an informal but authoritative style. It will begin with inspirational letters written by epileptics discussing how they have overcome their epilepsy and gone on to live healthy and productive lives. Subsequent chapters will deal with the mind, body and spirit connection, and the role of motivation, self-esteem and faith. In order to help readers reduce stress and learn how to incorporate epilepsy in their life so they can live with the disorder feeling good about there self. I show how they can create their own “personal journal" that combines use of positive imagery, relaxation, meditation and exercise.

The book will include my own personal experience growing up with epilepsy and how I overcame the disorder. The end of the book will include a section discussing how to keep yourself in good health emotionally, physically and spiritually. I help readers learn that to keep their seizures under control, they cannot just take medicine. They need to keep themselves healthy by eating right, exercising and sleeping properly. This chapter will introduce readers to "techniques and exercises" that will enable them to put the advice of the chapter into immediate practice. The last chapter of the book will include what medical technology has in store for epileptics, discussing new medicines, treatments and surgical procedures.

In addition, the appendix will include a health section to help you gain a nutritious diet, centers and organizations that help epileptics and a glossary to help understand medical terms in the book that are unfamiliar to the reader.

Through example and encouragement Epilepsy You're Not Alone will offer readers a variety of strategies for coping with epilepsy. Epilepsy You're Not Alone will present readers with a workable program for coping with their disorder and forming a healthy relationship with their mind, body and spirit enabling readers to overcome their disorder and get on with their lives.

 copyright 2001  

Web Site: stacey's website  

Reader Reviews for "The Reasons I Wrote Epilepsy You're Not Alone"

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Reviewed by MaryGrace Patterson
Thankyou for sharing your story..Its a testament of courage to inform the public about this .. The more people know about something , the better they understand it. Our oldest son is 48 and had had seizures since he was four. He is also considered low normal, . He has a home , wife and two grown daughters. Good luck....M
Reviewed by m j hollingshead
well done
Reviewed by Karen Lynn Vidra, The Texas Tornado
bless you for helping those in need; you are a mentor that people can look up to and learn from. wonderfully positive article; will have to check out that book myself someday; sounds like something i would enjoy reading!

(((HUGS))) and much love, your tx. friend, karen lynn. :D

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