My name is Doreen Calvert. I live in Teaneck, New Jersey, with my family, but unlike most folk, I don't do my playing outside until the sun goes down. I can't be out in the sun or else I could get very sick, possibly even die.
I have a very rare condition called xeroderma pigmentosum. Basically what that means is my skin is so sensitive, I can get huge blisters just from being out in the sun; I have to wear long sleeves and wear special medicated cream to keep my skin moist, as well as wear shades, and wear something to cover my head.
If I get exposed to the sun for more than five minutes (IF that if I'm lucky), I can get very huge, painful blisters and they can get infected, and then I end up in the hospital. I am also susceptible to skin cancer, so I have to be extremely careful.
I am 12 years old and am in the sixth grade. I am homeschooled. I am an only child. I don't have any brothers and sisters.
What I like to do mainly is listen to music (country) and read. In addition, I like to draw, write stories or poems, and ride my bike (again at night; same if I play basketball or frisbee). My room is kept dark, so no sunlight gets on me; the light from the sun or daylight hurts my eyes; they are extremely sensitive.
It is not easy living with a condition like mine, but I've done pretty well, all things considering. I just pray that continues and that I don't get cancer; that would just suck!! I pray that God protects me each and every day.
Well, I gotta go; it's time to switch classes; I will write in here again soon! Sorry it's not much, but this is how it is for me and how I live my life. Take care and God bless!
~To be continued.~