I hope knowing about Daniel's Spina Bifida won't make you hesitant to keep him. I don't know what I would do if you couldn't keep him for me. I think Rebekah Rachel has been enjoying him too. She was gushing about him when she was down here this afternoon.
I have a feeling the other shoe is about to drop. Tomorrow, I meet with Maria's therapists to hear their assessment. My gut tells me it's not going to be good news. I just hope it's not more than I can handle. Naomi, it seems like nothing can go right with my children. They have suffered so much and it seems like it just won't end. When one thing ends, something else follows right behind it.
Susie had her spinal tap this morning. As expected, it was horrible. They gave her something to numb the sight where they took the sample from but it didn't work. She was very brave though and didn't move at all. It broke my heart to hear her screams and cries. It was almost more than I could take. It was such a relief to just get back to the room, where she could rest. It bothered her they put her flat on her back for three hours following. After that, she was allowed to sit up again. I hope Rebekah Rachel didn't take Susie's state of mind personally. It really wasn't directed at her. She was still upset from the procedure. Hopefully, tomorrow will be better. She didn't mean to take her pain and frusterations out on Rebekah Rachel. I know Rebekah Rachel was just trying to help cheer her up but I have learned sometimes when Susie is upset, the best thing I can do is to just give her a little space.
Well, I am exhusted, so I am going to go. Tomorrow isn't going to be any better for me, but hopefully it will be for Susie.