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Michelle R Kidwell Power In The Pen

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Featured Book
The Slowest Cut
by Catriona King

Book 6 in the Craig Crime Series, set in Belfast, Northern Ireland. Available in paperback and e-book...  
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Books by Michelle R Kidwell Power In The Pen







The Cohens the Calloways and some of the Masons are heading to London while Rebekka Rachel goes for treatments they get a week of site seeing and fun...

 


 


 


 


 


 


 


 


Holly Hobby says:



Hi Hanna


Hanna Hope (Mini Me) says:



Hey


Holly Hobby says:



how are you?


Hanna Hope (Mini Me) says:



how r u?


Hanna Hope (Mini Me) says:



LOL I am good


Holly Hobby says:



I'm ok, had a cancer check up today


Hanna Hope (Mini Me) says:



how did that go?


Holly Hobby says:



I haven't gotten the results yet


Holly Hobby says:



I won't know until next Monday


Hanna Hope (Mini Me) says:



oh


Holly Hobby says:



yeah, it suckes


Holly Hobby says:



sucks


Hanna Hope (Mini Me) says:



I am going to London tomorrow


Holly Hobby says:



that's great


Hanna Hope (Mini Me) says:



there going to think I am a toddler probably


Holly Hobby says:



(Holly and Hanna are sisters technically)


Holly Hobby says:



yeah, I guess they will


Hanna Hope (Mini Me) says:



(Yeah I know but Hanna is at Naomi's)


Holly Hobby says:



(I know)


Holly Hobby says:



It looks like I will be moving to California


Hanna Hope (Mini Me) says:



Earth to Holly I know we are sisters now I will be moving too


Hanna Hope (Mini Me) says:



LOL


Holly Hobby says:



I forgot


Holly Hobby says:



I wish I could just get one place and stay there


Hanna Hope (Mini Me) says:



I know its strange


Hanna Hope (Mini Me) says:



yeah I know things are rather unsettled


Holly Hobby says:



yeah, very


Holly Hobby says:



Hope is screaming (again)


Hanna Hope (Mini Me) says:



Hopefully the new house will be more user friendly to me, I do not like having to use a step stool just to use the restroom


Holly Hobby says:



she's feeling all the tension


Hanna Hope (Mini Me) says:



Ugh sorry to hear that


Holly Hobby says:



she's been at it all night


Hanna Hope (Mini Me) says:



Today when Rebekka Rachel and I went to the store, some kid told her that she had a cute baby cousin, I finally told them I am older than Rebekka Rachel


Holly Hobby says:



that was mean of thrm


Hanna Hope (Mini Me) says:



I am almost sixteen not three


Hanna Hope (Mini Me) says:



they didnt realize I dont think but it does get rather frustrating


Holly Hobby says:



I bet it does


Holly Hobby says:



it has to be hard to be so small and look so much younger than what you are


Hanna Hope (Mini Me) says:



It is


Holly Hobby says:



sometimes I get judged unfairly b.c of my diabetes and pump


Hanna Hope (Mini Me) says:



and there are health issues that come along with being a primordial dwarf


Holly Hobby says:



I know there are, but what are they?


Hanna Hope (Mini Me) says:



hold on its easier for me to just paste them from the website than for me to write them out one by one i will show you


Holly Hobby says:



ok


Hanna Hope (Mini Me) says:



it can get kind of technical


Hanna Hope (Mini Me) says:



What does the name mean?


Primordial has been defined as belonging to or being characteristic of the earliest stages of development of an organism. Therefore, Primordial Dwarfism is a class of disorders where growth delay occurs at the earliest stages of development. Unlike


Holly Hobby says:



I bet


Hanna Hope (Mini Me) says:



some of the other forms of dwarfism where newborn infants can have average lengths, children with Primordial Dwarfism are born smaller than average and have intrauterine growth retardation (IUGR).


Hanna Hope (Mini Me) says:



What conditions make up the class of primordial dwarfism?


Unlike some of the other specific conditions described on this website, primordial dwarfism is not a specific diagnosis. It is in fact a class of disorders to which at least 5 different conditions are currently grouped: Russell-Silver syndrome, Seckel


Hanna Hope (Mini Me) says:



and Meier-Gorlin syndromes are relatively well defined entities and we will not discuss them here. We will limit our discuss to MOPD Type II. Most of the information below can be examined in more detail in Hall et. al (1).


Hanna Hope (Mini Me) says:



How common is primordial dwarfism?


All of the conditions are quite rare and very little is known concerning the incidences. For MOPD Type II, we estimate that there are no more than 100 patients in the United States and Canada giving a rough estimate of 1 in 3 million.


 


Hanna Hope (Mini Me) says:



Is MOPD Type II inherited?


The precise gene and inheritance pattern of MOPD Type II is unknown, but most data suggest that it follows an autosomal recessive pattern. There are several sibling pairs born to parents of average stature.


 


Hanna Hope (Mini Me) says:



What are the physical characteristics?


Below are 3 photographs of patients with MOPD II. Probably the most consistent physical characteristic in these children is severe intrauterine growth retardation (IUGR). Recognition of the deficiency can occur as early as 13 weeks gestation and it becomes progressively more severe over the length of the pregnancy. At term infants typically weigh less than 3


Hanna Hope (Mini Me) says:



3 oz. This is about the average size of a 28 week premature neonate. Adult heights are typically less than 33" and the voice is high pitched.


Hanna Hope (Mini Me) says:



Face and Skull:


Microcephaly. Head size is proportionate to body size at birth. However, as children grow and develop, the head grows slower than the body and becomes disproportionately small.


Hanna Hope (Mini Me) says:



Premature closure of the soft spots (fontanelles) and craniosynostosis


Prominent nose and eyes. The conspicuous nose may be obvious at birth or it may develop over the first year.


Small teeth with deficient enamel and increased spaces between them. Small roots in the secondary teeth. Secondary teeth can be missing or lost prematurely.


Trunk, Chest and Spine:


 


Hanna Hope (Mini Me) says:



Scoliosis and thoracic kyphosis in later childhood


Arms and legs:


Disproportionately short forearm in childhood, causing mesomelia.


Dislocated radial head with decreased range of motion at the elbows.


Dislocated hips and coxa vara at birth.


Lumbar lordosis, as a consequence of coxa vara.


Ligamentous laxity develops with age


Hanna Hope (Mini Me) says:



Other characteristics:


Fine and relatively sparse hair.


Pigmentary dysplasia of the skin.


What are the x-ray characteristics?


In the newborn, the x-rays typically do not demonstrate major structural abnormalities, although the pelvis is narrow with small iliac wings and flattened acetabular angles. The long bones may be overtubulated. Eleven rib pairs are


Hanna Hope (Mini Me) says:



sometimes seen, rather than twelve. As the children age, the bones appear thin and delicate with progressive metaphyseal widening at the ends of the long bones.


Bone age studies usually show decreased bone age; that is, the skeletal maturation process is slowed in these children and can be delayed 2 - 5 years behind the actual age.


 


Hanna Hope (Mini Me) says:



How is the diagnosis made?


The differential diagnosis for MOPD II is complex and is done clinically based upon history, physical characteristics, radiographic review and the exclusion of any other physical findings or laboratory abnormalities.


 


Holly Hobby says:



wow


Hanna Hope (Mini Me) says:



What are the associated medical problems?


Nutrition- Most infants with primordial dwarfism have feeding problems. Small volumes and frequent feeding are typical. Sometimes naso-gastric feeding or g-tube feedings are needed.


Hanna Hope (Mini Me) says:



Brain- About 25% of patients have structural or myelination abnormalities in the brain. Structural abnormalities have included: enlarged ventricles, abnormal gyral patterns and abnormal corpus callosum.


Development- Precocious puberty has been described in girls with breast development as early as 7 and menarche or the beginning of periods at 9 years. Boys do not seem to have precocious puberty.


Hanna Hope (Mini Me) says:



What are the things to watch out for?


Renal or kidney anomalies have been described and a renal ultrasound should be done as the diagnosis is being established.


Most of the patients develop farsightedness which requires glasses. Careful ophthalmologic evaluation is indicated at regular intervals.


Hanna Hope (Mini Me) says:



About 20% of patients have had abnormalities in the cerebral vascular system which can predispose to stroke. Children with MOPD II should have monitoring of their cerebral vascular systems by MRI / MRA.


There is no evidence of growth hormone deficiency nor is a response to treatment seen in MOPD II patients. However, in some cases an initial small spurt in growth can be seen, but does not


Hanna Hope (Mini Me) says:



appear to persist.


Holly Hobby says:



that's a heavy load for someone of any age, much less a teenager


Hanna Hope (Mini Me) says:



And the oldes Primordial Dwarf known to live is forty two


Hanna Hope (Mini Me) says:



yeah but like with anything else you have to take it day by day


Hanna Hope (Mini Me) says:



live life to your fullest


Holly Hobby says:



I tend to want to take on a whole month at once


Holly Hobby says:



like next month, I have an appointment with my diabetes specialist, general care dr and endocrinoligist


Holly Hobby says:



and I am already worried about what they will find to do to me


Hanna Hope (Mini Me) says:



Yeah I go through appts monthly and I have physical therapy daily but thankfully I can do most of my pt myself its just making sure my muscles are excercised and stuff


Holly Hobby says:



yeah


Holly Hobby says:



I have to be careful doing sports b.c of my pump


Hanna Hope (Mini Me) says:



yeah sports are not an option for me


Holly Hobby says:



what do you like to do?


Hanna Hope (Mini Me) says:



Mainly read and write and play with the younger kids


Holly Hobby says:



oh, ok


Hanna Hope (Mini Me) says:



talk online and hang with my friends


Hanna Hope (Mini Me) says:



But I like soccer as well, and I do ride a bike well its the size of a tricycle, but it gives me excercise


Holly Hobby says:



you mean you have friends :O :P


Hanna Hope (Mini Me) says:



Trying out for your comedy act are you Holy :O :P


Holly Hobby says:



I haven't really made many friends yet


Hanna Hope (Mini Me) says:



well I am sure you have plenty of sisters to make up for that :P


Holly Hobby says:



I was already thinking that


Holly Hobby says:



you seem to just overflow w. personality


Hanna Hope (Mini Me) says:



on a good day LOL


Holly Hobby says:



then you must be having a good day


Holly Hobby says:



can I ask you something?


Hanna Hope (Mini Me) says:



of course


Holly Hobby says:



this is going to sound stupid


Holly Hobby says:



but... Does your mom like me? she hasn't seemed to happy since I joined the family.


Hanna Hope (Mini Me) says:



Mamma Kendra says the only stupid question is the question you dont ask


Hanna Hope (Mini Me) says:



That has nothing to do with you she is suffering from Post Partum Depression


Holly Hobby says:



are you sure?


Hanna Hope (Mini Me) says:



I am postive, and if you hadnt noticed she has been feeling much better


Holly Hobby says:



yeah, she has lately


Hanna Hope (Mini Me) says:



She also was not to happy with the situation between The Sanduskys and Naomi and Audrey and Susie and them


Holly Hobby says:



I just wondered, b.c I didn't exactly instantly warm up to her like the other kids did


Holly Hobby says:



that has been stressing everyone it seems


Hanna Hope (Mini Me) says:



no


Hanna Hope (Mini Me) says:



it has nothing to do with you


Hanna Hope (Mini Me) says:



She loves you


Hanna Hope (Mini Me) says:



you dont need to question that


Holly Hobby says:



I worry she's send me back b.c I am "faulty"


Hanna Hope (Mini Me) says:



Take a look around you Holly, she is not sending anyone back


Holly Hobby says:



but they all love her, I do too, I'm just not really the attaching type


Holly Hobby says:



I'm afraid to get attached to people


Hanna Hope (Mini Me) says:



well you better get used to it, because we are a very loving family and Mamma is doing much better now that the Quads are older


Holly Hobby says:



every time I think I have kicked the habit, gotten over my fear, it rears it's ugly head again


Hanna Hope (Mini Me) says:



Well I need to make sure everything is packed Holly, I leave for London in less than twenty four hours, and I have to go to doctors first thing in the morning to make sure my trach and everything is working as it should, just a precaution we take when we travel


Holly Hobby says:



I hope everything goes well for you


Holly Hobby says:



send me a postcard, ok?


Hanna Hope (Mini Me) says:



of course


Hanna Hope (Mini Me) says:



you will be getting more than a post card


Holly Hobby says:



I'll be sitting at home, bored :(


Holly Hobby says:



:P


Hanna Hope (Mini Me) says:



you could come if you wanted


Holly Hobby says:



I think it's too late now, to get a ticket


Hanna Hope (Mini Me) says:



we have an extra :P


 


Holly Hobby says:



did your mom say I can go?


Hanna Hope (Mini Me) says:



yes of course


Holly Hobby says:



ok, g2g, I gotta pack :D


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Reviewed by Karen Lynn Vidra, The Texas Tornado 8/21/2007
Interesting story; very well done you two! BRAVA! BRAVA!

(((HUGS))) and much love, your friend in Tx., Karen Lynn. :D

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