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Karen Lynn Vidra, The Texas Tornado

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Robin Elizabeth: Special Needs Parenting 101
By Karen Lynn Vidra, The Texas Tornado
Monday, April 14, 2008

Rated "G" by the Author.

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A story about a little girl who touches other people with her presence and courage.

My name is Edith Breaux.  I live in Port Arthur, Texas, with my beautiful family:  my husband, Roger, and our five children.

I am a homemaker.  My husband is an insurance adjuster.  We are never short on money or things we need in life; our God sees to that.

We are indeed blessed.  God's brought us through many incredible hardships, among them being divorced (this is my husband's and my second marriage), the deaths of parents or relatives over the years, worrying about bills or where our next meal is going to come from, and more recently, disability.

Our daughter was born disabled.  She was born with something called spinal muscular atrophy, which has left her dependent on a wheelchair for mobility and other health issues that have put her in and out of the hospital, including severe problems with her breathing.  She uses a ventilator to assist her.

Robin Elizabeth is not expected to live to see the age of ten; yet her courage, her will to live, is nothing short of incredible. 

At the age of five years, she has such a giving spirit.  She lives life to the full.  Robin is rarely sad; she sees joy in everything.

Through Robin Elizabeth, we've learned about compassion, acceptance of the unknown or those who are different.  We've learned courage, patience, and, through her, the saving Grace of our Lord.  Since becoming saved, we've been blessed in supernatural ways.

Somehow, God brings us the finances when money falls short.  If we need food, we have friends (or family) bring food to us.  We have a wonderful church family who prays with us, supports us in our darkest hour of need; what more could we possibly need??

Robin is a beautiful little girl with silky dark hair and eyes; she looks just like me.  In fact, we kiddingly call her "Mini-Me".  Her older brothers, Tate, 13, Ricardo, 11, Miguel, 8, and Ethaniel, 6) just adore Robin; they would do anything for her, to make sure she is happy and loved. 

When Robin falls ill or ends up in the hospital again, it's the boys who fall upon their faces, cry out to God to spare their sister.  So far, God has heard them and never let them down.

He's gotten Robin through some terrible experiences.  Robin's nearly died several times, and somehow God brings her through to live yet another day.

We don't know how long Robin will remain with us, but we plan on making the time she has left memorable.  We pray that she can touch more people. 

It isn't easy to raise a child with such difficult medical problems.  Compared to others, our needs are nothing, don't look so foreboding.

If people could only see the joy in our handicapped daughter's smile or hear her tinkling laughter, look beyond the wheelchair or ventilator that helps her breathe, the world would be a much nicer place. 

That is the thing we want most for our daughter: for people to see her as she IS, inside, not for what she may appear on the surface.  

We will write more about Robin Elizabeth later.  Right now I have to get her medication ready, and give her her breathing treatments.

I hope you enjoyed getting to know our family.  I am indeed a person who's been blessed in life!

~Written by Edith Breaux, mommy to Tate, Miguel,  Ricardo, Ethan, and Robin Elizabeth), Port Arthur, Texas. :)

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Reviewed by Cryssa C 4/19/2008
Living life to the fullest... in the end, hopefully there will be no regrets that way...
Reviewed by Mary Lacey, Desertrat 4/14/2008
It is so sad about the possible impending death of a loved one, especially a child, but with God's help, we'll all get through it. This story tells it all so well. God Bless Karen.

Mary, the desertrat
Reviewed by Michelle Kidwell Power In The Pen 4/14/2008
This is a great write, thank you for sharing
God Bless
Reviewed by Sanja Dayslink 4/14/2008
Amidst the tears, I want you to know that that sweet little angel will be forever in my prayers.

Sanja xo
Reviewed by Bernice Lakota 4/14/2008
What a beautiful name for a beautiful angel...I will say a prayer for Robin Elizabeth
Reviewed by Karla Dorman, The StormSpinner 4/14/2008

Beautiful pen of love and compassion, of acceptance and hope for those born with disabilities - well done.

(((HUGS))) and love, Karla.
Reviewed by E T Waldron 4/14/2008
Karen you should be in a position that deals with the handicapped. You are so compassionate and your stories are a beautiful way to close the gap between those who are disabled and those who aren't! You make us see the person beyond the suface. You really should send your stories to magazines etc Did you ever send to an ezine? Put ezine in google then choose from the list to send a story to.


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