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Karen Lynn Vidra, The Texas Tornado

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Addisyn's Story. (Special Needs Parenting 101)
By Karen Lynn Vidra, The Texas Tornado
Friday, July 11, 2008

Rated "G" by the Author.

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           >> View all 7,357


A little boy with microcephaly brings joy to his family's world.

My mame is Rena Joy Pickles.  Don't laugh; that's my real name. I live in Galveston, Texas, with my husband, Charles ("Chuck") and our five children.  "Chuckles" the Bull Mastiff rounds out our motley crew.  (The kids named him; I didn't! LOL)

I am going to write about our youngest, Addisyn.  Addisyn Michael was born two years ago, a seemingly healthy baby.  It was apparent from the time of his birth that something was seriously wrong.  He was born with an abnormally small head, a condition known as microcephaly ("small head").

It was not known whether he would be disabled or not.  The news shattered us. 


Yet the news was to get worse in time.  It turned out that Addisyn not only had microcephaly:  he also had signs of being brain damaged.  Just how much was not known until  further tests could be run.  He had seizures and signs of cerebral palsy.

As he grew older, Addisyn exhibited more signs of his disability.  The doctors predicted he would never walk or talk, and remain a newborn, as far as development.  Although he would age, he'd remain an infant, would need 24/7 care.  He had just too much wrong with him.  

Now at the age of two years, Addisyn is more like an infant than a young toddler.  He cannot sit up without help; he is difficult to feed (he may have to end up going on tube feedings before too long, according to his primary doctors), and he often ends up in the hospital periodically with myriad problems that have threatened his life.  He is on oxygen most of the time; his lungs are weak.

Out of all this doom and gloom, there is some good news:  our son is able to hear and see, and he can smile if you speak to him, say his name, hold him.  He loves people; the more people that are around him, the happier he is (unless they are doing painful procedures or tests on him, that is).

When we go out in public, we put our son in his specially made stroller, and we go on long, leisurely walks.  Addisyn loves the feel of the wind on his face, the smell of the fresh sea air, the sounds surrounding him.  He loves the warmth of the sun on his body, and the sounds of birds singing (or gulls screaming overhead) causes him to break out into smiles.

People oftentimes do stare or ask prying questions (this is normal); however, we are honest, direct in our answers.  We don't shy away from the truth; if people can't accept us or our special child, then we don't even bother with them.  Our son (let alone our family) does not need any more aggravation!

Well, we are going to go.  Addisyn has another doctor's appointment at two; we are going to go out to eat at Joe's Crab Shack, then head over to Dr. Tooley's office.  Hopefully Addisyn will have a good report; we can only pray that happens!

I will be writing about Addisyn (and our other children) from time to time.  Take care and may God bless you!

~Love, your new friend, Rena Joy Pickles, Galveston, Texas. )


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Reviewed by Rose Rideout 7/12/2008
You are always so willing to share stories with us that feed us with the info we need about what and how the rest of the world survives. Thank you for sharing Karen.

Newfie hugs are coming your way, Rose
Reviewed by Michelle Kidwell Power In The Pen 7/11/2008
Karen you brought little Addisyn to life in this right, and once again you educated us in the process, thank you
In Christs Love
Michelle~
Reviewed by Joyce Bowling 7/11/2008
What a touching story my friend, I've said it before and I'll say it again...you never cease to amaze me with your abundance of information about so many different types of diseases and dissabilities. Your story does make one stop and count their blessings and the blessings of their children and grandchildren's health. Again, another informative write with realistic characters...well done dear friend. I've missed everyone with my brief time away from the den!
Blessings,
Joyce B.
Reviewed by Georg Mateos 7/11/2008
Being such an enormous quantity of children ailments, it amazes me that we can use thrillions waging war and not a mealy penny to research for a cure or aleviation to the infirm little ones.
That you writings put a spot light on they behalf is not enough, the rest of us should start writing to our Representative Jerks and make them do something.
God bless America they sais, of course, they are the ones milking it!

Georg
Reviewed by Felix Perry 7/11/2008
The amount and variance of children's diseases and disabilities is staggering and painful to think about but with understanding maybe the world and it's inhabitants can make life easier for them.

Fee
Reviewed by Karla Dorman, The StormSpinner 7/11/2008
Karen,

Why do little children suffer? And yet, there is a spark of life in this little boy's story - well done.

(((HUGS))) and love, Karla.
Reviewed by George Thompson 7/11/2008
Sad piece you write here. But, there is some joy in your life. Keep the faith.


George

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