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Michelle R Kidwell Power In The Pen

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A Diamond in the Rough (Shelley Grace's Story In Her Own Words)
By Michelle R Kidwell Power In The Pen
Saturday, January 24, 2009

Rated "G" by the Author.

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A young woman with Arthrogryposis Multiplex Congenita a rare condition that affects muscles and joints...

As a little gitl and even today, I get people who stare at me, who look at me with pity. I don't do the pity thing to well, I have to much of a life to lead.

 

 

 

 

Jan.24.2009

My name is Shelley Grace and I suffer from a rare disorder called  Arthrogryposis Multiplex Congenita, a condition that affects my joints and muscles, I can not walk without aid, and all the joints in my body are affected.  When I was diagnosed as a baby very little was known about this condition, and some did not think I would have any quality of life, but Mom would not listen to them and I was grateful for that.  My Mother did not coddle me and because of that, I was able to learn ways to move past my limitations.

As a little gitl and even today, I get people who stare at me, who look at me with pity.  I don't do the pity thing to well, I have to much of a life to lead.

My Mother has been on my side no matter what I have been going through.  Multiple surgeries, and have wore braces, casts, and splints throughout my life.

Some people tend to think that because I have this condition it means I have some sort of mental defect, and though some cognitive function can accompany this condition.  I was blessed that this is not the case with me.  I am able to function at a normal level and in fact more recently I received my Bachelors degree in college.  My Mom had to guide me down the aisel, but I was determined to walk and not use my chair, and I did it with the help of my loving Mother.

Well I guess I better get going, I have church in the morning, and though it is still early I have a lot to do before bed, including eating LOL!

God Bless

Shelley Grace

Arthrogryposis, also known as Arthrogryposis Multiplex Congenita, is a rare congenital disorder that is characterized by multiple joint contractures and can include muscle weakness and fibrosis. It is a non-progressive disease. The disease derives its name from Greek, literally meaning 'curved or hooked joints'. [1] [2] [3] [4] [5] [6] [7] [8] [7] [9] [10]

There are many known subgroups of AMC, with differing signs, symptoms, causes etc.[3]. In some cases, few joints may be affected and may have a nearly full range of motion. In the most common type of arthrogryposis, hands, wrists, elbows, shoulders, hips, feet and knees are affected. In the most severe types, nearly every joint is involved, including the jaw and back.

Frequently, the contractures are accompanied by muscle weakness, which further limits movement. AMC is typically symmetrical and involves all four extremities with some variation seen.[5][1]


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Reviewed by Karen Lynn Vidra, The Texas Tornado 1/25/2009
Love the information you share within this story, Michelle; well done! Keep on writing, informing, and educating!

(((HUGS))) and much love, your friend in Tx., Karen Lynn. ;D


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