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Karen Lynn Vidra, The Texas Tornado

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Brooke's Story: Living With Williams Syndrome. (Part One)
By Karen Lynn Vidra, The Texas Tornado
Thursday, April 08, 2010

Rated "G" by the Author.

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A little girl lives with a rare condition.

My daughter, Brooke Paisley, lives with a little understood condition known as Williams syndrome, which has caused mental (and behavioural) issues, accompanying physical features (snub nose, small teeth, underdeveloped jaw, small fingers and toes, small eyes, curly hair, etc.), and us searching for answers as to why my only daughter had to be born with this disability.

Brooke often has temper tantrums; she gets frustrated easily.  This is why she attends a special school for children with disabilities, so teachers and other aides can work with her one-on-one, to make sure she gets the attention she needs.  She is six years old.

Besides Brooke, we have a son, Myles, who is eight.  He is perfectly healthy.  We don't know why he wasn't born affected with Williams, but we are grateful that he wasn't.  Having one child with a disability is hard enough; we couldn't imagine raising two.

Sometimes Myles gets frustrated with his sister, especially when she gets into one of her stubborn moods or whines; we get frustrated too.  Sometimes we feel like we're the only people on the planet who has to deal with this syndrome; we know we are not, but before we had our daughter, we had never heard of it until after she was born six years ago.  Ever since, we have scoured the Internet, looking for all the information we can possibly dig up, so we can learn more about this condition, and hopefully, down the road,  help our daughter move towards independence or having at least a somewhat normal life.

We would do anything to help Brooke gain her full potential.  It is going to take a lot of patieince, ingenuity, and know-how to make sure that this happens.  It is going to be a trial-and-error thing; we just have to learn to take it one day at a time.

Well, I have to go.  I will write more about Brooke, Myles, and how we are coping in a future journal entry.  Until then, this is Cassidi Joy Yung saying so long!  Take care!

~Cassidy Joy, Richmond, Virginia.  :)

*to be continued.* 


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Reviewed by Patrick Granfors 4/11/2010
You have a knack for turning up the unusual. Maybe you should write for the "House" medical series on TV. Patrick
Reviewed by Karla Dorman, The StormSpinner 4/9/2010
An excellent write, Karen. Well done.

(((HUGS))) and love, Karla.
Reviewed by Georg Mateos 4/9/2010
The science as it is today are traveling towards the future on those famous seven miles boots, or so it appears, although most of it is not dedicated to find cures for ailments, but to make the lives easy for the lazy ones.

Georg

Reviewed by Dawn Anderson 4/9/2010
As always, you teach so well through your short stories, Karen.
Reviewed by Paul Berube 4/9/2010
Well done, Karen. God bless.
Reviewed by Charlie 4/8/2010
I'm grateful to the advancement in science to such an extent that we are continuously learning more and more about diseases and how to treat, and even cure some of them. --Charlie
Reviewed by Mark Lichterman 4/8/2010
Every day, it's as if there are not enough known diseases, when everyday we learn of another. Well written, informative and heart moving.
Your friend in Southern California, Mark
Reviewed by Sandie Angel 4/8/2010
Hi Karen:

An excellent story you have presented, and I'm sure there will be more to this story. Also, your stories are very well written. Thank you for sharing!

Sandie Angel :o)
Reviewed by Michelle Kidwell Power In The Pen 4/8/2010
Excellent story here Karen you always bring new awareness to our stories
In Christs Love
Michelle~
Reviewed by Richard Orey 4/8/2010
Thank you for raising my awareness of this terrible affliction. Until now, I had never heard of Williams Syndrome. With one daughter who has been a Registered Nurse for over thirty years and who deals daily with sick babies in the nursery, I'll make sure I talk with her about this.

It is said by many that there is a purpose for everything in life. These type situations that can occur in any family test our faith.

Bless you for your steadfast support and understanding of Brooke and for sharing this personal information with us here in the AD community. We will be praying for you and Brooke.

Richard


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