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Karen Lynn Vidra, The Texas Tornado

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Astriah Lanae':Special Needs Parenting 101.
By Karen Lynn Vidra, The Texas Tornado
Sunday, August 07, 2011

Rated "G" by the Author.

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a young girl lives with spinal muscular atrophy, a neuromuscular disorder. This is her story, as told by her father.

Image of handicapped sign (c) 2011, by Karla Dorman.

My beautiful daughter, Astriah Lanae', is six years old.  She lives with my wife, Bella, and myself (my name is Jim) in Mansfield, Nottinghamshire, England.  She is the youngest of two children.  Besides Astriah, we have a son, William Penick, who is eight.

Our daughter is also handicapped.  She was diagnosed with spinal muscular atrophy, a neuromuscular disorder, when she was an infant.  At six, she cannot walk or dress herself: she has very little strength.  Eventually her disease may end up compromising her breathing/lungs/heart, but for now she is doing as well as can be expected.  Every day we have with her is nothing short of a God-given miracle.

Our daughter has to have occupational and physical therapy three times a week at hospital.  She has to have this, or her disease will progress even faster; we don't want that, so we do this for her.  We do this to keep her alive.

We were very sad that our beautiful child with the luminous dark-brown eyes and headful of fire-red curls would be given a death sentence; however, we decided that we would do anything possible to keep her alive.  This is one reason why she is still here.  We have the doctors keep her condition in check, and we monitor her very closely.

William is sad that his little sister cannot do much, but if anything, having a child like Astriah has taught him humility, compassion, and acceptance of those who are handicapped.  He would do anything for her (and he does); both children have an extremely close, loving relationship.  We are very proud of our boy; it is not easy dealing with Astriah's medical problems at times, especially if she should happen to get sick and/or end up in hospital yet again.

Like any little girl her age, Astriah is into anything princess-y, pink, purple, or cute.  Astriah loves to sing, read, and write.  She is an exceptionally intelligent young girl with an I.Q. of over 100 points.  She will probably be placed into the Gifted/Talented class when she starts school this coming month; she will be in Grade First.  She loves going to her riding lessons at the stables not too far from our home; she rides horses to help with her balance and stamina.  Astriah has been doing this onw for a little over a year; her instructors (and her horse) are very loving and paitient with her.

At first, Bella and myself were angry at God for giving us a sick child, but we have since learned to count our blessings: even as bad as SMA is, there are many other people who have it far worse, and we plan on making every moment spent with Astriah count.  We love her so much; we would bend over backwards to make her happy or comfortable.

Another thing Astriah loves is going to church.  She sings in children's choir every Sunday and loves going to "children's church", where she and her fellow classmates learn about God, Jesus, and all the other denizens of the Bible.  Church is one of her very favourite activiites.

Well, Astriah is calling (as is William), so I'd best see what they need.  I will write in here again another day; until later, this is Jim Throckmorton singing off!  God bless and thank you for taking the time to read (hear) my story.  There will be much more to tell.

~Regards, Jim.

~To be continued.~ 

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Reviewed by Carole Mathys 8/11/2011
It is always a pleasure to read one of your stories, Karen...thanks for sharing your talent
peace, Carole~
Reviewed by Michelle Kidwell Power In The Pen 8/8/2011
Excellent story thank you for sharing!!
In Christs Love
Reviewed by Paul Berube 8/8/2011
Nicely done, Karen. God bless.
Reviewed by Karla Dorman, The StormSpinner 8/7/2011
I am not as strong as these characters you write about ... very well penned, Karen.

(((HUGS))) and love, Karla.
Reviewed by James Johnston 8/7/2011
Thanks, Karen Lynn, for forgiving my slip of the lip! I have a daughter named Rebecca Lynn so if I associate you two maybe I will remember.
Today's story is a very emotional description of life with a physically challenged child. Thanks for the lesson of how to deal with this trauma in a loving and devoted way.

God's blessings ~~~ Just Jim

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