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Karen Lynn Vidra, The Texas Tornado

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Shaoshanna Hope's Story. (Part Two) (Special Needs Parenting 101)
By Karen Lynn Vidra, The Texas Tornado
Wednesday, September 21, 2011

Rated "G" by the Author.

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A continuation of a very special girl's story, as told by her mother.

Image of night-time lightning (c) 2011, by Karla Dorman.

Dallas, Texas, September 21, 2011~

Brenda Coleman writing.  Thought I would steal a few minutes before Shao and Ridge, our two youngest, wake up to start the day.  Then it's all business, especially when the older ones wake up as well.  Have to get their lesson plans in order and teach them.  Then I won't have any time except for teaching the children.  

I do that until Pete (my husband) comes home from his beat.  

He's a cop.  

The children are well, but Shao (she's nine) had another seizure the other day. We were at the store.  Very frustrating.  

It wasn't a bad one, but it was enough to scare the wool out of me.

 I was pushing her around in her wheelchair when she started jerking uncontrollably.  Good thing she was buckled in or else she would have fallen right onto the floor.  It was embarrassing, not to mention, scary.

People were staring at her as if she had AIDS or some contagious disease.  I had to explain to people that my daughter is epileptic and right now we are trying to find the right kind of medications to control the seizures.  

The seizure lasted only about five minutes, thank goodness, but to me it seemed like hours.  Shao then went limp and snoozed heavily as she sat in her chair.

Shao ended up sleeping for the rest of that afternoon.  

She then woke up about ten o'clock and was up all night in a cranky mood.  It was not fun!

I felt so sorry for her!  

I knew then that she wasn't fit to go to school, so I let her sleep in while I kept a close eye on her.  Thank God she didn't have any more incidents.

I did take her to the doctor yesterday, where I reported of the latest incident.  No further damage to her brain, but her doctor is as frustrated as I am about the inability to control the seizures, even with medication.  

We may end up having to sign Shaoshanna up as a possible candidate for surgery to see why her seizures aren't being controlled and to see if that would help, but I don't want to subject my daughter to further testing, pain, or possibly even more damage to her brain if things go unexpectedly wrong.  

She is already blind and has CP; she doesn't need anything else on top of that!!

The thought of it all is truly frightening, but we may not have any other choice.  This latest seizure she had makes the fifth time this month!  That's the most she's had in a while!

Just keep us in your prayers; we would greatly appreciate it!

Happily, the other children (Gia, Brent, and Ridge) are doing great.  They love learning and have happy, busy lives.  They are all active in our church and love learning about God.  In addiition, Gia accepted Christ as her Lord and Saviour at church this past Sunday; Pete and I were so happy for her we cried.  It was a very holy moment for our family.

I am happy to say the weather has finally cooled down here in Texas.  Highs have been running anywhere from the mid/upper eighties to the lower nineties instead of the 100's, which is a huge blessing, but we still need rain.  Lots of it!  The other day we had some storms roll through, but other than a lot of lightning, brief heavy rains, and some small, pea-sized hail, we didn't really have any issues.  

The lightning and thunder did scare Ridgely, though; I had to try to comfort him until the storm passed.

Well, Shao is crying; she must be waking up.  She is not a very happy person upon arising.  Besides, she has school.  I will have to get her ready and feed her before her bus arrives.  I will write in here again; just pray that something can be done to help Shao; I hate to see her suffering so needlessly from her seizures!  I would greatly appreciate it!


~To be continued.~   

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Reviewed by Michelle Kidwell Power In The Pen 9/21/2011
I agree with Karla five minutes is a long time for a seizure, and this is an excellent story
In Christs Love
Reviewed by Karla Dorman, The StormSpinner 9/21/2011
With the seizure lasting nearly five minutes, I would have taken Shaoshanna to the doctor, just to be safe ... that's a long time. Well done, Karen.

(((HUGS))) and love, Karla.
Reviewed by Rose Rideout 9/21/2011
I love how you keep us updated and this is no acception Karen.

Newfie Hugs, Rose
Reviewed by Paul Berube 9/21/2011
Well updated, Karen.
Reviewed by Mr. Ed 9/21/2011
pray that something can be done to help Shao; I hate to see her suffering so needlessly from her seizures!

So very, very sad. We should all be praying for less suffering children.

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