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Karen Lynn Vidra, The Texas Tornado

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L'espoir Miracle's Story: Special Needs Parenting 101. (Part One)
By Karen Lynn Vidra, The Texas Tornado
Thursday, September 29, 2011

Rated "G" by the Author.

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A child lives with a rare genetic disorder. This is her story, as told by her mother.

Brooke Rambo is my name.  I live in Cleveland, Tennessee, with my husband, Ray, and our two children: our son, Brent Dylan, who is eight, and our six-year-old daughter, L'espoir Miracle.

L'espoir Miracle has special needs.  She was born with a rare syndrome, called Cornelia de Lange, which has caused both physical and mental disabilities. 

Some of the problems that L'espoir faces include seizures, mental and developmental delays, feeding problems, eye/hearing impairments, a small head size/shortened limbs/small stature, gastro-esophagal reflux disorder (GERD), and problems with speech/walking.  L'espoir can walk, but not well; for this reason, whenever we go out, we put her into her wheelchair and away we go! 

It's a lot easier for her this way.

It is hard whenever L'espoir ends up in the hospital, but we know that God will bring her through whatever she may face.  If there's anything about us, we have an extremely strong faith/belief in God and we know that we can always trust in Him to help us through the "valleys" of life.

L'espoir has gone through some things kids should not have to face, but despite all that, she has the heart of a lion.  She loves life and enjoys the simple things, whether it is the sun shining, the birds singing, the leaves fluttering to the ground, the feel of cool breezes of autumn upon her skin, a dog barking, a cat purring, or the northern lights billowing in the sky when geometric activity is most active. 

She is absolutely incredible!

If anything, our daughter has taught us patience, courage, compassion for the severely disabled, grace, joy, and kindness towards people who are less fortunate than most of us.  We like to think of her as a God-given gift and we will do anything in our power to help her navigate this complicated maze called life!

Well, we have to get ready and go.  L'espoir has a doctor's appointment, then we plan on taking the family out to eat and to the mall for the day.  I hope you liked reading about our daughter; she is certainly something special!

~Sincerely, Brooke, her mom.  :)

~To be continued.~

P.S.: Her first name means "Hope" in French. 

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Reviewed by Paul Berube 9/29/2011
Very well done, Karen.
Reviewed by Karla Dorman, The StormSpinner 9/29/2011
An excellent story of love and acceptance, Karen. Well done.

(((HUGS))) and love, Karla.

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