Tears are falling fast and furious from my eyes as I write this: it is difficult to see, but if I don't write this down, I might go mad with grief ...
Yesterday, Cora (my wife) and myself (Winston Phillip) said goodbye to our baby boy, Hollister Derek. He died at 10:24 yesterday morning. He was only a week old. He was born with Harlequin Baby Syndrome, which is a rare but lethal skin condition. He suffered mightily during his short time on earth, and it was yesterday morning (early) when he crashed; no matter what the doctors or nurses did, they could not stabilize him, and he, mercifully, died.
Maybe it was for the best that Hollister did pass away: he is no longer suffering or in any pain. Yet it doesn't make it easy for Cora or myself. We now have to make arrangements for his wake and then his funeral and let friends and family know that our child passed away.
We no longer have a child; our child is now in Heaven. He is an angel who lives in our hearts.
It will be extremely difficult to live with the fact that we aren't bringing our son home and that unless we have another child, the nursery we had planned for Hollister will remain empty. We will have to face days and days, months and months, and years and years, without the sound of childish or babyish laughter unless God sees to giving us another child.
It will be hard to see our friends who have kids and especially those who are expecting another child because even though we did have a child ourselves, he didn't really live long enough for us to really get to bond with him or get to know him better.
We are gong to have to trust in God more than ever and try to make sense of Hollister's death. Yet as I said earlier, he suffered terribly with his condition, so maybe, just maybe, his death was a blessing in disquise.
Just keep us both in your prayers during these sad times; pray that we can get through the grief and shock that has suddenly rocked our world. We would both greatly appreciate it! Thanks in advance!