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Category: 

Children

Publisher:  Lulu.com ISBN-10:  1411620194 Type: 
Pages: 

31

Copyright:  2004 ISBN-13: 
Non-Fiction


Click here to buy this book!

"My Mommy has Epilepsy," is an children's book that helps children understand what epilepsy is and what to do if someone is having a seizure.

  

 (Black & White Illustrations) DO YOU OR A LOVE ONE HAVE EPILEPSY? DOES YOUR CHILD HAVE EPILEPSY? ARE YOU LOOKING FOR AN EXCELLENT CHILDREN’S BOOK TO TEACH WHAT EPILEPSY IS TO YOUR CHILD?

Millions of people have epilepsy or experience Seizures. Are you one of them? Are you trying to figure out how to explain to your child or a child in your family about your disorder, so they will understand what epilepsy is and what they can do to help you when you are experiencing a seizure? The book helps educate children and help them understand what they can do if a friend or love one is having a seizure. There are so many myths that still roam through our society about epilepsy. "My Mommy Has Epilepsy" gives children and their family truth; medical facts explained in simplistic terminology so there is a clear understanding about epilepsy.

Product Details:

  • Printed: 63 pages
  • 6.00" x 9.00"
  • perfect binding
  • 60# cream interior paper, black and white interior ink
  •  100# exterior paper,
  • full-color exterior ink
 
ISBN: 1-4116-2019-4
Publisher: Lulu Inc.
Copyright: © 2004 
Language: English
 
 
 
 
 
Table of contents:


"My Mommy Has Epilepsy," is children's story book with illustrations on each page. The author included extra pages on the back to write notes about any important factors about epilepsy.

The author was motivated to write this book after she had a seizure with the kids (ages 7, 5, and 2 years) while walking the dog. Chillemi feels it is important for a child to understand what epilepsy is, not to fear epilepsy, and what to do if someone you love is having a seizure.

This is what the book entails.
 
 Author comments :
 
All my life, I have worked very hard writing books, articles,stories, going to TV interviews, going to washington to talk in front of congress and doing seminairs to help others empower themselves.

I refused to let epilepsy to take control over my life. I am determined to overcome any obstacle in my life caused by epilepsy.

There is no reason to feel different from anyone else. You have the right to be happy, to live life to it's fullest and enjoy the beauty and love ones that surround us.

I'll be honest I did not always feel life this, but I was not going to give up. I was determined to help myself and help anyone who suffered from epilepsy or any disorder or disability.

I interviewed over over 400 people with epilepsy. I created techniques, inspirational words to inspire your soul and much more.
I even had one women email and she told me that if it was not for my books and my regiments she would have committed
suicide. It brought tears to my eyes, but I am so happy that I can help others beside myself. 

 
Publisher's comments :
 
This book has been selling well and the positive feedback we have received is unbelievable.
 
 
Della Cruz Anchor/Reporter, Talk Show Host for News
 
'Life deals us many hard blows that we often don't expect. I admire the fact that someone like Stacey Chillemi was thrown a curve ball that may have knocked many of us down to the point where many of us may not have wanted to get back up, but she did. It wasn't easy but she possesses a determined spirit that won't let her give up. For that reason Stacey will go far and achieve whatever dreams she sets her mind to accomplish.'Della Crew

 
 
Published in the Asbury Park Press 06/9/05

BY ALESHA WILLIAMS
STAFF WRITER


Manalapan resident Stacey Chillemi, 33, understands the difficulties inherent in growing up with epilepsy.

Near-death experiences in her early adulthood, such as having a seizure while driving, impressed upon Chillemi the seriousness of her condition.

"My fiance, now my husband, was in the car," Chillemi said. "I realized I could have hurt myself as well as him. I had to accept the fact that I had epilepsy and not hide it from anybody."

Chillemi said she turned to libraries and bookstores to search for answers to her questions about her disorder.

"At that time, all the books about epilepsy were written in medical terminology, so if you were not educated in the medical field, you had no idea what they were trying to explain," Chillemi said.

Chillemi said she published an article asking people with epilepsy to write to her with their stories. She received hundreds of letters from across the United States and Canada and interviewed about 400 people, she said.

"We were all going through the same issues and emotions," Chillemi said. "I learned, "Hey, I can't feel sorry for myself — I need to do something about it, and try to help others.' "

And so began Chillemi's career as an author, launched in 2000. She since has written eight books about epilepsy, about life and about love, including her latest, "Epilepsy and Pregnancy: What Every Woman Should Know," co-authored by Dr. Blanca Vasques (Demos), due to be published in 2005.

"Basically, in my books I try to focus on trying to help people understand first of all what the disorder is, how to accept it and teach the people in their lives to understand it so it doesn't tear a family apart, how to love themselves and get on with their lives so they can live a healthy and productive life with the disorder," Chillemi said.

In spite of living for 27 years with a condition that keeps some reclusive and anti-social, Chillemi has managed to live by those ideals. She volunteered as a mentor with the Epilepsy Foundation of New Jersey and in 2002 won the organization's Outstanding Volunteer Award. She is a featured speaker at schools, organizations and political events and also spoke before Congress with the Epilepsy Foundation in 2004 on behalf of people with epilepsy, she said.

Today, Chillemi lives in Manalapan with her husband Michael, 33, and three children, Michael, 6, Alexis, 4, and Anthony, 2, and said she often is touched by e-mails and letters from readers who say that her books have helped change their lives.

"It's hard to believe that something you wrote helped someone like that," Chillemi said. "It makes me feel very good to give people encouragement, hope, to help them realize that they are somebody — that they all have a meaning in life and just have to find that destination." 
 

 




Excerpt

Hello, my name is Stacey Chillemi and I am the author of this children’s book, “My Mommy Has Epilepsy.” I am writing this piece to you to explain what the book is about and how this children’s book can help you and your family understand, cope and not fear the disorder known as epilepsy. In the year 2000, my husband and I had moved into a new neighborhood with my 2 sons, and my daughter. All three children were toddlers at the time. Even though I developed epilepsy at the age of 5 my kids had never witness me having a seizure.

One day I was outside my home and I had an aura I felt a seizure beginning to evolve and before I new it I was having the seizure in front of my children for the first time. My children were scared and even though I had explained my disorder many times they were still a bit confused about what epilepsy is, what happens and what to do if someone is having a seizure.

You can explain what a seizure is, but honestly to see someone have a seizure, especially for a child can be scary and very dramatizing. After the seizure my children were very scared, confused, and worried about their mommy and they had many questions to ask afterwards.

I tried to explain everything to them in simplistic terms, so they could understand epilepsy better, but everything didn’t seem to click. They were still confused, scared, and worried. They wanted to help me, but they didn’t know how.

So one day I sat down wrote a story about the day I had a seizure. I explained what epilepsy is, and what to do if someone has a seizure. My goal was to educate and try to explain to my children why they shouldn’t fear epilepsy and seizures.

When someone understands epilepsy and they know what to do you’ll notice that the fear begins to disappear and the situation (having the seizures) is treated with more confidence and children are able to cope with their love one’s disorder better.

The story and the illustrations I created helped my children understand my disorder completely. And they’re not afraid of my seizures anymore. They know what to do and the fear of their mommy having seizures has gone away. It’s a part of mommy. It’s a part of her life and now they have learned to accept it. In fact my daughter many times has introduced as, “Hi this is my mommy and she has epilepsy!”

I put many epilepsy resources in the back to help educate you and your children.

Epilepsy is not going to stop me from enjoying life. In my eyes, I am winning the battle because I have not even up on life. I am determined to live a happy, healthy and productive life with my family and friends.


I have 2 children books out with completely different illustrations. The first book I wrote was called, "My Mommy Has Epilepsy." What motivated me to write another children’s book about epilepsy is that one day my son Michael came to me with the book in his hand and asked me, "Mommy can daddies have epilepsy too?" "If mommy's can have epilepsy can't daddies have them too?" So I went back to the drawing board and created a new story and new illustrations and called it, “My Daddy Has Epilepsy."


Thank you,

Mrs. Stacey Chillemi







It helps educate children and help them understand what they can do if a friend or love one is having a seizure. There are so many myths that still roam through our society about epilepsy. "My Mommy Has Epilepsy" gives children and their family truth; medical facts explained in simplistic terminology so there is a clear understanding about epilepsy.





I am a writer and I have published a book called “Epilepsy You’re Not Alone.” Epilepsy You’re Not Alone is an inspirational self- help book that teaches people with epilepsy how to live a healthy and productive life. The book shares encouraging stories and gives readers a workable program for coping with their disorder enabling readers to overcome their disorder and get on with their lives.





Accomplishments: I am an H.O.P.E. Mentor, for the Epilepsy Foundation. I speak at different events for schools, organizations, political events and anywhere my help is needed to educate people about epilepsy. I have recently been on four talk shows. The interviews focused on the importance of understanding what epilepsy is, how to help someone having a seizure and giving people with epilepsy encouragement and hope for the future.


I have been on radio stations discussing epilepsy and I have recently appeared in many newspapers all over New Jersey such as, The Leader, Belleville Post and the Star Ledger. On June 26, 2002, I was honored an award by the Epilepsy Foundation of New Jersey for Outstanding Volunteer Award and I spoke in Washington in front of congress.







Professional Reviews
Published in the Asbury Park Press
Published in the Asbury Park Press
Manalapan woman spreads awareness about epilepsy

Manalapan resident Stacey Chillemi, 33, understands the difficulties inherent in growing up with epilepsy.

Published in the Asbury Park Press 06/9/05

BY ALESHA WILLIAMS
STAFF WRITER


Manalapan resident Stacey Chillemi, 33, understands the difficulties inherent in growing up with epilepsy.

Near-death experiences in her early adulthood, such as having a seizure while driving, impressed upon Chillemi the seriousness of her condition.

"My fiance, now my husband, was in the car," Chillemi said. "I realized I could have hurt myself as well as him. I had to accept the fact that I had epilepsy and not hide it from anybody."

Chillemi said she turned to libraries and bookstores to search for answers to her questions about her disorder.

"At that time, all the books about epilepsy were written in medical terminology, so if you were not educated in the medical field, you had no idea what they were trying to explain," Chillemi said.

Chillemi said she published an article asking people with epilepsy to write to her with their stories. She received hundreds of letters from across the United States and Canada and interviewed about 400 people, she said.

"We were all going through the same issues and emotions," Chillemi said. "I learned, "Hey, I can't feel sorry for myself — I need to do something about it, and try to help others.' "

And so began Chillemi's career as an author, launched in 2000. She since has written eight books about epilepsy, about life and about love, including her latest, "Epilepsy and Pregnancy: What Every Woman Should Know," co-authored by Dr. Blanca Vasques (Demos), due to be published in 2005.

"Basically, in my books I try to focus on trying to help people understand first of all what the disorder is, how to accept it and teach the people in their lives to understand it so it doesn't tear a family apart, how to love themselves and get on with their lives so they can live a healthy and productive life with the disorder," Chillemi said.

In spite of living for 27 years with a condition that keeps some reclusive and anti-social, Chillemi has managed to live by those ideals. She volunteered as a mentor with the Epilepsy Foundation of New Jersey and in 2002 won the organization's Outstanding Volunteer Award. She is a featured speaker at schools, organizations and political events and also spoke before Congress with the Epilepsy Foundation in 2004 on behalf of people with epilepsy, she said.

Today, Chillemi lives in Manalapan with her husband Michael, 33, and three children, Michael, 6, Alexis, 4, and Anthony, 2, and said she often is touched by e-mails and letters from readers who say that her books have helped change their lives.

"It's hard to believe that something you wrote helped someone like that," Chillemi said. "It makes me feel very good to give people encouragement, hope, to help them realize that they are somebody — that they all have a meaning in life and just have to find that destination."

For more information about Chillemi's books, visit www.authorsden.com/staceydchillemi

Books also are available through amazon.com and barnesandnoble.com on the Web.


Alesha Williams: (732) 308-7756 or awilliams.app.com

Article is located at:

http://www.app.com/apps/pbcs.dll/article?AID=/20050609/REPORTER06/506090372&SearchID=73210631770205



Reviewer: Ernest Frost (Florida)
I found this book a very easy read, which is important in trying to explain epilepsy to children. To educate children of the disorder is something that might seem like an difficult task, something thats pushed off to the side for a later date. However, with this book, its a task that doesn't look so daunting. You can explain epilepsy to your children in language that they understand.


Excellent book
I found this book very insightful. Although not having epilepsy myself, I think this book is a good way to explain to children about epilepsy. I, myself, learned quite a bit about the disorder from reading it. Being prepared and knowledgeable is the best way to help someone with epilepsy. This book helps children become prepared.


Reader Reviews for "My Mommy Has Epilepsy"


Reviewed by Myles Saulibio 6/14/2008
Hello Stacey---
Bravo on your beautiful writing---knowledge shared for those who need to understand our not-so-perfect world...

Aloha and Best,
Myles

Be well...
Reviewed by Julie Donner Andersen 4/26/2008
I love books that explain, in a child's language, those "adult world" things they struggle to understand. Well done, Stacey. I can see this being a series of children's books to explain all kinds of medical mysteries to children.

Julie
Reviewed by Angela Watkins 3/21/2008
Greetings,

I did like your writing style and some of your accomplishments. Keep up the good work speaking at schools. Some medicines will tell you if you continute to take them you could have a seizure.


So one day I sat down wrote a story about the day I had a seizure.

Accomplishments: I am an H.O.P.E. Mentor, for the Epilepsy Foundation. I speak at different events for schools, organizations, political events and anywhere my help is needed to educate people about epilepsy. I have recently been on four talk shows. The interviews focused on the importance of understanding what epilepsy is, how to help someone having a seizure and giving people with epilepsy encouragement and hope for the future.


I have been on radio stations discussing epilepsy and I have recently appeared in many newspapers all over New Jersey such as, The Leader, Belleville Post and the Star Ledger. On June 26, 2002, I was honored an award by the Epilepsy Foundation of New Jersey for Outstanding Volunteer Award and I spoke in Washington in front of congress.


I created techniques, inspirational words to inspire your soul and much more.

Near-death experiences

Give people encouragement, hope, to help them realize that they are somebody — that they all have a meaning in life and just have to find that destination."


Angela Watkins

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