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Live, Learn, and Be Happy with Epilepsy
“Live, Learn, and Be Happy with Epilepsy,” will be a 200-page book targeted for individuals who have epilepsy.
The techniques in "Live, Learn and Be Happy with Epilepsy," will help you build the inner power to do anything or become anything you want in life. The approaches in this book for dealing with epilepsy will enable you to reform a better direction in your everyday life.
This book will give you the strength, self- confidence and knowledge you need to gain to overcome having epilepsy and begin living life to its fullest. One of the main goals in this book is to help you recognize that life has much to offer. Life does not have to stop just because you have epilepsy.
This book is to shows you how to live with epilepsy, empowering you to take responsibility for your life and well-being. While seemingly revolutionary, the message is simple: It is important that people with epilepsy learn how to live with epilepsy and endure it.
If you do not learn how to deal with the obstacles that epilepsy imposes on you then you could end up destroying yourself emotionally and physically. One way to prevent this from happening is to develop a lifestyle that is suitable for your own needs. You need to be your own designer, creating pathways to a fulfilling future. This world has millions of opportunities just waiting for you to encounter. It does not matter what age you are. You can achieve anything you put your mind too even with epilepsy.
Stacey Chillemi is 32 years old, a mother of three, a wife and writer. Her journey and reason for being is defined each day by the happiness in her children’s eyes and the people with epilepsy she has helped through her writing.
By Jenna Martin, Senior Editor
Published in the Asbury Park Press
Manalapan woman spreads awareness about epilepsy
Published in the Asbury Park Press 06/9/05
BY ALESHA WILLIAMS
Manalapan resident Stacey Chillemi, 33, understands the difficulties inherent in growing up with epilepsy.
Near-death experiences in her early adulthood, such as having a seizure while driving, impressed upon Chillemi the seriousness of her condition.
"My fiance, now my husband, was in the car," Chillemi said. "I realized I could have hurt myself as well as him. I had to accept the fact that I had epilepsy and not hide it from anybody."
Chillemi said she turned to libraries and bookstores to search for answers to her questions about her disorder.
"At that time, all the books about epilepsy were written in medical terminology, so if you were not educated in the medical field, you had no idea what they were trying to explain," Chillemi said.
Chillemi said she published an article asking people with epilepsy to write to her with their stories. She received hundreds of letters from across the United States and Canada and interviewed about 400 people, she said.
"We were all going through the same issues and emotions," Chillemi said. "I learned, "Hey, I can't feel sorry for myself — I need to do something about it, and try to help others.' "
And so began Chillemi's career as an author, launched in 2000. She since has written eight books about epilepsy, about life and about love, including her latest, "Epilepsy and Pregnancy: What Every Woman Should Know," co-authored by Dr. Blanca Vasques (Demos), due to be published in 2005.
"Basically, in my books I try to focus on trying to help people understand first of all what the disorder is, how to accept it and teach the people in their lives to understand it so it doesn't tear a family apart, how to love themselves and get on with their lives so they can live a healthy and productive life with the disorder," Chillemi said.
In spite of living for 27 years with a condition that keeps some reclusive and anti-social, Chillemi has managed to live by those ideals. She volunteered as a mentor with the Epilepsy Foundation of New Jersey and in 2002 won the organization's Outstanding Volunteer Award. She is a featured speaker at schools, organizations and political events and also spoke before Congress with the Epilepsy Foundation in 2004 on behalf of people with epilepsy, she said.
Today, Chillemi lives in Manalapan with her husband Michael, 33, and three children, Michael, 6, Alexis, 4, and Anthony, 2, and said she often is touched by e-mails and letters from readers who say that her books have helped change their lives.
"It's hard to believe that something you wrote helped someone like that," Chillemi said. "It makes me feel very good to give people encouragement, hope, to help them realize that they are somebody — that they all have a meaning in life and just have to find that destination."
This book has ben a life saver for my mother who has epilepsy. There are really good recommendations for every day control of the disorder and how to live a happier life. The book is easy to read and has a wealth of information you won't find anywhere else. Kudos to the author.
Reviews for "Live Learn, and Be Happy with Epilepsy"
|Reviewed by Tammy Walker
|I have always thought that you have been able to live and be happy with epilepsy other people just do not understand that because the dr doesn't tell them they do just what the dr tells them and that is that they can do nothing and that is why I am try to speak out about this I also have 2kids seizures married 15yrs and ,VNS , take 4 meds. but still have seizures I had a TC last night they change alot but we get up and go on and do what awe have to do.
Keep it up! More people need to speak up I am trying to get something started in Tennessee. and it has been really hard because there is no help here.
Thanks, Tammy Walker ktwalker.tnweb.com
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