It's hard sometimes to understand how God can use a disorder, such as, epilepsy in our lives to bring about something good... but he can.  It's hard to understand why He sometimes allowsbad things to happen to His people... but He does.  

You don't need me to tell you these things.  God has brought you through difficult  times before, and he will help you with your seizures.  But until He makes things clear, just remember you're not alone.

Having to cope each day with epilepsy is tough.  Many people with epilepsy feel as though they are alone.  They feel they are trying to battle the disorder all by themselves.   People who do not have the disorder, ask me “ How can epileptics feel they are battling epilepsy alone when they have doctors, family and friends to comfort them”.   To live with the disorder, one needs to communicate with people who have the same disorder.  It gives one the opportunity to open your heart and share your unsettled emotions about how it feels to have epilepsy. 

One way of doing this is to subscribe to Epilepsy USA. This is a small newspaper that the Epilepsy Foundation writes.  They send the newspaper to you every two months once you become a member.  The newspaper informs you about what is going with epilepsy.  It has a section where it lists addresses of others with epilepsy that are looking for pen pals.  The newspaper also tells you about different events around the states that are constantly going on that you can participate in.  For information you can write to the main Epilepsy Foundation in Maryland.

The address is:

4351 Garde City Drive
Landover, MD 20785 

If you do not already subscribe to this newspaper than I strongly suggest that you begin too.  The newspaper is one way to help give you encouragement, so you can focus on your life and look at epilepsy in a positive way.       

This is important because one can easily become depressed focusing on the negative aspects of epilepsy and wallowing in self-pity.  This is why support from other individuals who suffer from the same disorder is so important.   Understanding what someone with the disorder goes through is difficult, if you don’t experience it yourself.

There are many people on this planet who have epilepsy.  Below listed other  organizations and support groups trying to help people with epilepsy and their families.

National Epilepsy Library

1‑800‑EFA‑4050

Epilepsy Information Service

Medical Center Boulevard

Winston‑Salem, NC 27157‑1078

1‑800‑642‑0500

Internet Resources

www.efa.org

The Epilepsy Foundation is a national organization that works for people affected by seizures through research, education, advocacy and service.  National programs include a toll-free informational service (1-800-EFA-1000), research, professional education, legal and legislative advocacy and employment issues.

Epilepsy Foundation of America Gene Discovery Project

www.epilepsygene.org

The purpose of this project is to educate families with epilepsy about current research in genetics and to join in a research partnership with international medical centers to identify the gene for epilepsy and their family.

American Academy of Neurology

www.aancom:80/home.html

American Academy of Pediatrics

www.aap.org

Child Neurology Society

www.umn.edu/cns

Child-Neuro Website

www.waisman.wisc.edu/child-neuro/

Free Electronic News From the AAMC

www.aamc.org/events/aamcstat/aamcnews.htm

International Bureau for Epilepsy

www.who.ch/programmes/ina/ngo-37.htm

International League against Epilepsy

www.websciences.org/engel

The international League against Epilepsy’s objective is to advance and disseminate knowledge concerning epilepsy.  Membership consists of national and professional organizations and individuals involved in research and interested in exchange of scientific information concerning epilepsy.

Epilepsy Ontario

www.epilepsyontario.org/links/index.html

AED (Antiepileptic Drug) Pregnancy Registry

1-888-233-2334

AED (antiepileptic Drug) Pregnancy Registry is the first North american Registry for pregnant women who are taking any AED-old or new, monotherapy or polytherapy to prevent seizures.  All information is kept confidential.  Educational materials will be provided.  Enrolled women will be asked to provide through their doctors information about the health status of their infants.  The findings will be analyzed to assess the fetal risk from all AED in pregnancy.

Registry Site Genetics & Teratology Unit

Massachusetts General Hospital

Fax: (617) 724-8307

Email: aedregistry.helix.mgh.harvard.edu

Web site: http://neuro-www2.mgh.harvard.edu/aed/registry.nelk