A severely disabled girl is the joy of her parent's world.
Amaya Desiree' is our joy. We cannot imagine life without her.
Amaya was born with her umbilical cord wrapped twice around her neck. As a result, she went without oxygen and sustained brain damage that left her unable to walk, talk, see, or feed herself. She requires care twenty-four/seven.
Yet with all of her disabilities, Amaya is as beautiful as they come. She has long, curly dark-brown hair that tumbles to her rear-end in a mass of shiny, thick curls, huge brown eyes fringed with ridiculously-long lashes, a tiny snub nose, and a smile that can light up the room. She loves people and she loves people cuddling with her or reading to her. As long as people are paying attention to her, then she's happy. Deliriously happy.
We were devasted at first when we found out that Amaya would be severely handicapped, but we then decided to do all we could to help our child. We haven't looked back. It isn't easy at times, but God sees us through each and every trial, and Amaya has a wide circle of friends who love and support her just as much as we do.
Amaya goes to a school for children who are disabled. She is one of the most popular ones in her class. Everyone who sees her or knows her adores her. And she loves people right back. If there is one thing she can do well, it is to be loved and to give love right back.
Amaya is our youngest. We also have a son, Garrett, who is nine. Garrett would defend her sister if his life depended on it. They are extremely close and when she is sick and/or in the hospital, he is so lost. We feel so bad for him!
Well, I hate to go, but I'm cooking lunch, and I don't want it to get burned. I will run along for now; I will write more about our family (Amaya especially) later. Until then, this is Grace Leeds saying so long and may God bless you!
Well told story Karen. Karla they have schools with teachers especially trained to work with the severely handicapped in highschool I work in a class room for the severely handciap, it was amazing what the teachers did, and most of all the way the Children touched your hearts!!!
In Christs Love
Michelle~
I had to really think about this, Karen, to allow the senses and faculties that Amaya DOES have to embrace my understanding more than her handicaps and disabilities. I can see what Karla means because our hearts and minds tend to fail over grappling with even one set-back - let alone a whole listful! But I can see from your explanations here that Amaya can HEAR and she can FEEL and even if she can't talk she can COMMUNICATE with perhaps some forms of sound and, most importantly, LAUGHTER! I can see that she loves life and loves living and loves loving - and being loved - ALL THOSE THINGS in themselves must make her an absolute magnet and a joy-bringer and joy-giver to all those around her. Thank you, as always, for making me think LONG AND HARD to fully appreciate both the wonders and the hardships of living with such a special person and the special circumstances that need to prevail in order to survive. AND the special people that Amaya needs to be part of her world. Bless you always for this, Kate xx
I don't understand ... if a child is unable to see, walk, talk, or feed herself, how can she go to school??? It breaks my heart each time you write about kids like this ... sad, even though you write about hope. I don't see how the parents can keep such a positive outlook. I'd be devastated.
Edie Batstone's first book of colourful picture poems invites us to jump into a child's world of wonder and possibility, just as a child jumps into a puddle - knowing only that it seems like a good idea at the time! Join her on this journey of disco
This second book in Edie's 'Puddle' series is filled with wonderful catchy rhyming poems that have positive nostalgic messages. Her whimsical illustrations carry the poems along on ripples of warm vibrant colours.
