Johnny feels bad that his girlfriend in California is sick and is in the hospital, and he is worried about his future, too. But he is glad to hear from her at long last.
Monday, March 13, 2006, 7:12 p.m., C.S.T.~
Dear Rebekkah~
Hi! Thanks so much for writing; it is such a relief to hear from you! I have been worried about you!
I am afraid that what I have won't get any better. My disease (Duchenne's muscular dystrophy) is progressive, meaning that it gets worse over time and there is nothing that can really be done to prevent it from happening. It is scary to think that I won't grow up to have any kids or graduate from high school or learn to drive a car, but I am happy that I know that I am going to Heaven to be with Jesus when I die.
I try to think about that a lot of the time, but when I am struggling with my health, it is difficult, and at times I get depressed.
I wish I could get better from muscular dystrophy, but that won't happen unless a Miracle cure occurs in the next few years (or months). Until then, I have to learn to live with the implications of my disease and try to make the best out of a bad situation. I also have my family, my friends, and my teachers to guide me through my life, and I have God on my side. As long as He is there, I can't go wrong! :)
Rebekkah, I am sorry to learn that you are still in the hospital. That infection sounds bad, and I hope that you don't end up losing your leg. That would be horrible!! I will most certainly keep you in the utmost prayer! (Just as long as you do the same for me.)
I know about those medicines. I have been in the hospital plenty of times myself, and I just wonder what will happen to me next. I will see my muscular dystrophy doctor at the MD clinic on Wednesday, March 15, 2006. He will let mommy know what is going on based on what she has told him about what I am going through. I keep hoping for the best, but after going through what I have been lately, I highly doubt it. In fact, I am afraid I am getting worse.
It is enough to take all the joy out of me. I have been doing more crying these past few weeks than I have ever since I found out that I wasn't going to get any better from this darned old muscular dystrophy! :(
I liked that picture you put on your letter. Was that you? If so, you look very pretty in your ballerina outfit. I like to watch ballet dancing, and at times I wish I could leap and jump around like that, but I can't. Instead, all I can do is sit in my chair and imagine dancing like Mikhail Baryshikov, or whatever his name is, you know who I mean--that famous Russian ballet dancer who could dance like nobody's business!
How is the weather there in Sacramento? Here we have had some nasty weather (no damage here, but we did lose power briefly). We didn't have power for that long because we have a generator (due to some of the kids needing oxygen all of the time or some other medical machinery), but when the lights went out, it did startle us.
We were under tornado warnings and watches all day, and my weather radio was having a field day. We didn't actually have a tornado touch down here, but the sirens were blaring, and it was scary! Have you ever heard a tornado siren? If not, it has its own built-in chill factor; once you do hear it, you will never forget the sound! I hope the weather is nicer there than it has been here today!
Well, I have school tomorrow, and I have to go take my evening meds (plus my breathing treatments), so I will go for now. I will write again soon. Take care, Rebekkah, and hope you are out of that darned old hospital SOON! I will be praying extra hard for you tonight and in the days ahead! I will also tell Pastor Bilkey about your situation, and my church will pray for you too.
God bless!
(((HUGS))) and much love, your boyfriend in Tennessee, Johnny. :(
Karen, this is so heartbreaking to see Johnny getting worse and being so depressed, but it is so good to see how he has faith and how he and Rebekkah care about each other. An excellent letter!
Lots of love, Birgit and Roger
Good to hear Johnny writing to Rebekkah. They need to stay in close touch. They are strength and living will for one another. The support Johnny gives in this letter is just courageous, as he is battling a disease himself. Compassion sometimes is the key to healing. Johnny may receive a miracle cure. Scientists are working all the time to come up with cures. I wish him and Rebekkah all the best. Thanks for the letter today, Karen Lynn.
Poor Johnny, poor Rebekkah, both young and fighting illness with a courage they don't feel. Strong writing makes the story and emotion come alive. Well done!
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