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H. Lena Jones

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     How short the span of life is, especially when Alzheimer strikes at your door!

When Alzheimer Strikes

H. Lena Jones

 

He could hear water tumbling into the bathtub; hear Mildred’s childish laughter; hear the attendant chiding and coaxing her to step into the tub. The last three years were sad years for him; sad because he had watched his beloved slip through the stages of Alzheimer disease. He couldn’t bear to put her into a nursing home, he wanted to care for her himself. He wanted to be there for those rare moments when she was herself, in case it was the last.

He blinked back the sting at the back of his eyes. “Lord,” he prayed, “how quickly time passes.  Just yesterday we were young and madly in love. We…oh Father, when my Milly goes, don’t make it too long for me. For now, I must be brave for her, be here for her. Give me another rare moment with her…let her share that one precious memory with me again. Thank you.” He wiped the one tear that escaped out the corner of his right eye.

Derek didn’t have long to wait for the Home Attendant to wheel Mildred out in her wheelchair.

“My dear,” he said with a warm smile, “how lovely you look today…as pretty as the day I first met you.”

Mildred laughed, her eyes sparkled with recognition.  “When he was first given to me, Macbeth was just the cutest little piglet I’d ever seen,” said eighty-year-old Mildred Sparks to her husband. 

Derek reached for the frail hand. God had answered his prayer. This was going to be one of those rare moments when his wife was in a talking mood. “Oh, yes, the piglet,” he whispered. “Tell me about it.”

For sixty years Derek had heard his wife recount the story and for sixty years he’d had to pretend he was hearing it for the first time.  But he didn’t mind one bit; his beloved was temporarily back in the real world.

“I was only six then,” continued Mildred, rocking her body back and forth in her chair.  “Sure, I had checked the animal to make sure all its body parts were present and accounted for—short legs with cloven hooves, short curly tail, and long flexible snout.  But the one thing I didn’t check was its…” Here Mildred cleared her throat.

            Derek closed his eyes and leaned back in his chair.  He knew the piglet’s story word-for-word.  At the right moment—usually when Mildred paused for a deep breath, he knew it was his cue to ask the right question.  Now was such a time.

            “What?” he said, cupping one hand behind his ear.  “What should you have checked, my love?”

And as always, Mildred would not repeat herself. “Well,” she said, adjusting her frail body in the chair, “like every six-year-old; I had to make sure the piglet had a comfortable bed on which to sleep, and a blanket to keep it warm.”  Mildred paused and inhaled deeply.

            “And what did you name the little swine, Mildred dear?” asked Derek quickly before she had a chance to exhale the lungful of air.

            “Macbeth,” said Mildred exhaling the name like a bellows expelling air at red-hot cinders.

            “Macbeth?  So, it was a boy piglet, then,” said Derek, his moustache twitching like blades of grass shimmering in a gentle wind.

            “I didn’t know if it was a boy or a girl piglet, dear.  At six I wouldn’t know the difference.” said Mildred.  “So I named it ‘Mac’ – that’s part of a boy’s name, and ‘Beth’ – that’s part of a girl’s name, although I preferred to think of it as a boy.  Now, stop interrupting and let me continue, will you?”

            Derek adjusted his shoulders trying to stifle the giggle that was threatening to erupt like Mount Vesuvius.  He waited patiently to be cued in for his next question.

            “Every morning I bathed and dressed Macbeth.  I brushed his short coarse bristles before bringing him his morning slop.  Often I would sit and watch him snort and grunt as he ate.  When he finished, I would pat him on the head and tell him what a good boy he was for finishing his meal.  Then I would reprimand him for making such a mess.  I always had to wash slop off his snout before I left him, you know.” Mildred paused again.   

Of course, it was Derek’s cue to ask his next question, but he had dozed off.  Only when he heard Mildred suck in her breath audibly did he jolt out of his little nap.

            “Ah, yes, dear,” he said, hoping he was about to ask the right question.  “You said you dressed Macbeth after you’d given him a bath.  What exactly did you mean, sweetie?  Dress him? Why?”

            “Mom knitted two sweaters for Macbeth – a black one and a red one.  I alternated them each morning.  Oh, how Macbeth loved being made a fuss of.  Then came the time when he outgrew his sweaters.  He was older then, and I had to let him mix with the other pigs.  I no longer bathed, dressed, or fed him.  This made me sad, and for one whole day, I refused to eat.  But Dad said it was best for Macbeth to be with the other pigs, because it needed to be pig-trained.  What better place to do that than among its own kind, eh?  So Dad let me help him carry the huge buckets of slop to the pigs’ trough. 

“Then, one day, I noticed that Macbeth was getting fatter and fatter.  I told Dad he was giving him too much food.”  Mildred paused and took her time inhaling.  When she cast a covert glance at Derek, she was glad to see that he was paying, or appeared to be paying, close attention to what she had been saying.

            “Anyway, what did your father say was the matter with the animal?” piped up Derek on cue.

            “Oh, he said, Macbeth needed as much food as possible?”

            “And why was that, my love?” Now the questions were more rapid.

            “Because . . .”

            “What kind of an answer is ‘because’, Sweetie?”

            “The only answer you deserve for being nosy.”

            “That’s not fair, Milly.”

            “Say ‘please’ then.”

            “Please then, what kind of an answer was ‘because’?”

            Mildred threw her head back and broke into a deep hearty laugh.  Tears poured down her wrinkled cheeks.  Derek loved to see her laugh like this and he truly enjoyed her trip down memory lane.  It made her look younger and it made him imagine her as an innocent six-year-old.  Mildred’s laughter was infectious and soon Derek was laughing too. 

Eventually, Mildred dried her tears, looked Derek in the eyes and said, “Because Macbeth was going to have…” Mildred burst out laughing again.  Of course, Derek already knew the answer, but he had to wait patiently for Mildred to gather herself and tell him the rest of the story.  He handed her his handkerchief.

            Finally, after wiping her eyes and blowing her nose like a foghorn, Mildred heaved a great big sigh then said, “Babies.  Macbeth was going to have babies.  You see, Derek, I should have asked…I should have checked its…but I didn’t know…” Mildred hesitated like she always did because even at eighty, she still had difficulty saying the word.  One gentle prod was required here and as usual Derek provided it, knowing the answer would be a soft whisper.

            “You should have checked its what, sweetheart?”

            “Gender…oh Derek, I….”  Mildred’s eyes glazed over. 

Derek knew her journey down memory lane was over.  He reached for her hand and gently caressed it.  The back of his eyes stung.  “My sweet Mildred,” he whispered and leaned over and kissed her soft lips.

For a moment Mildred responded, and squeezed his hand, then her fingers stiffened.  She pulled away, her eyes fixed on the man beside. She withdrew her hand.

“Who are you?” she whispered.  “It’s not proper for the gardener to be familiar with his employer, you know.”

            Derek swallowed the lump in his throat. "My apologies, Madam, how presumptuous of me."

            Please, God, he prayed silently. Let us have tomorrow too!

 

 

 

 

 

 
 
 

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Reviewed by Jill Carpenter 11/27/2006
Lena, I read this when you first posted it, but was not able to leave a review. It is a subject that breaks my heart. My mom was an Alzheimer victim. It truly is a heart wrenching disease. We used to call mom a "walking encyclopedia" because she read so much and could remember everything. She also designed clothes and sewed beautifully, and she wrote, her letters and journals were a hoot, such a wonderfully funny woman. I think that was the saddest part for her, losing those skills. She fought the disease tooth and nail for many years, and worked hard to hide it from her family. She kept sticky notes all over the place so she would remember where things were and what they were called. But then she lost the ability to read the notes.

Anyway, from the comments it's obvious that this subject touches a lot of us very deeply. Your work is always full of kindness and love for your fellow man. Yours is a gentle spirit that is appreciated by many (and that includes me! :o)
Reviewed by Richard Centner 11/8/2006


As an Alzheimer's caregiver, I found the story quite touching. I wish my wife could put sentences together as much as Mildred did in the story. On the other hand, Brunetta, my 65-year-old wife of 40 years is more lucid than Mildred, has a sense of humor, an infectious laugh, and can answer Yes or No questions. She no longer knows her name or mine, although she still knows close family members and recognizes the names when she hears them. We know the time may come when she'll need residential care or 24-hour home health care, but (like Derek) we hope to postpone that as long as possible. Our PCA congregation is wonderfully supportive -- like Derek, encouraging her to participate as much as possible, but not patronizing her. The kind of encouragement Derek gives in the story is critical for prolonging the number of "good days" that he talks about. My wife's normal social activities bring her joy, and seem to help with symptomatic relief. So Derek's interaction with Mildred is both accurate and medically sound. One of the reviewers mentioned faith, something Derek demonstrated in his prayers. Faith is also a major source of our strength. Music stays with dementia patients longer than speech does; and, Brunetta can still sing a number of her favorite hymns despite her limited speech. I tailor our evening devotionals to her, avoiding complex thoughts, and closing with the Lord's Prayer, which she can still recite pretty well along with me. Reading Lena's poignant account, I couldn't help viewing the Macbeth tale as performing the same function for Mildred as the Lord's Prayer and favorite hymns do for my wife. I doubt that Derek understands how engaging Mildred in conversation during her "good" moments not only shows his love for her, but is therapeutic as well.
That, I suggest, is exactly the message conveyed by the best married Alzheimer's patient/caregiver couples: Motivated AND animated by their love, they inevitably bring about positive medical consequences. Love, after all, engages the mind and emotions rather thoroughly; and, researchers believe both attitude and mental activity are keys to how well an Alzheimer's patient does following diagnosis. I left the story believing that Derek's prayer for "tomorrow" will be granted, along with quite a few tomorrows to follow.
The author shows great skill in the economical use of words, not to mention skill in choosing words with impact. She quickly draws the reader into the story, wins their sympathy, and helps them to understand both the joy and frustration of even a good day for the caregiver. She also painted a moving portrait of the tragedy engulfing Mildred, the Alzheimer's patient herself. Finally, like me, I suspect Derek would tell someone who praised him for his courage and patience, "When you love someone who has stood by you in sickness and in health, and has shown her love for you in countless ways over the years, it isn't courage that keeps you at her side. It's the thought that you could do nothing less, for she would do the same for you. It is, in other words, simply what people genuinely in love do for each other."
Reviewed by Aberjhani 9/27/2006
What an extraordinary story Ms. Jones. There's no doubt that Alzheimers is one of the most terrifying epidemics of modern times. But your wisely crafted story illustrates how it can also be an opportunity to exercise greater love, strength, and compassion in our lives. Much gratitude for this beautiful gift of hope and grace.
Aberjhani
Reviewed by P. Michaels 8/20/2006
Hi Lena, I decided to read this story. I love the way you told it. The child within us is always there. My mother spent much of her childhood in Children homes. When she grew old and could no longer take care of herself, we placed her in a nursing home. One day she told me that they were mean to the children in the dining room. She had reverted back to the days of her childhood. I wished I could have taken her into my home, but we lived in a bi-level house which
meant that we would have to carry her up and down stairs. We also had only one bathroom then.

Best wishes.
Reviewed by Sandie May Joyce (Sandie Angel) 8/19/2006
Hi Lena:

What a heartfelt write this is! A well-told story!

Sandie May Angel a.k.a. Sandie Angel :o)
Reviewed by Ch'erie de Perrot 7/2/2006
Dearest Lena,
Your gift of writing and captivating your audience is astounding. I was pinned throughout this story. A remarkable talent you doth possess :)
I watched a DVD last night with Judy Dench and Kate Winslet, you probably know the one, IRIS..And though I have seen some elderly in nursing homes with Alzheimers, none of them have been close to me.
I took in this movie with great awe and interest, and it was truly inspiring, though terribly sad.
That humans just decend into a mental abyss, is frightening, and one can only be acutely aware of the suffering it causes, both the person afflicted and the loved one's caring.
A must see that film I thought, and so when I saw your write advertised today, I jumped to your den without hesitation.
I am glad to of been made so much more aware now of this disease.
TY so much for bring it to life in writ.
A blessing
Love Ch'erie
Reviewed by Sandra Mushi 6/30/2006
What a beautiful, nostalgic write, Lena. It's heartbreaking watching a loved one slowly slipping through your fingers.

God bless,

Sandie.
Reviewed by Miller Caldwell 6/30/2006
How accurate, charming and poignant.
It is a growing curse but a caring environment lets it breathe and occasionally makes us smile and laugh. Give them comfort and support no matter how hard, for our turn may come.
Milly
Reviewed by April Smith 6/29/2006
This is so sad...thanks for sharing, April
Reviewed by Karen Lynn Vidra, The Texas Tornado 6/27/2006
Powerful, heartbreaking read; Alzheimer's is a cruel disease! God bless those affected by the horrors that is Alzheimer's! Thanks for sharing this needed write! Very well done, Lena!

(((HUGS))) and much love, your friend in Tx., Karen Lynn. :( >tears <
Reviewed by Birgit and Roger Pratcher 6/26/2006
A wonderful story about the heartbreaking times so many have to go through. One of our neighbors went through altzheimer with his wife and it was a terrible time for both of them. We always admired his strength and patients and his unshakable faith. We do hope that tomorrow will be given to many of them,
wonderful done Lena,
B&R
Reviewed by J M 6/26/2006
Lena, I watch this every day in my position it is so heartbreaking thankyou for posting this!!!!!Bless you
Joselyn

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