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Karen Lynn Vidra, The Texas Tornado

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     A father writes about his son, who is severely handicapped, and the challenges he faces, as well as the challenges faced by the whole family.

This is, of course, fiction.

I have a son who should be the light of my life, but every day, it is getting harder to love him.


You see, my son isn't like most kids. My son is six, but he is more like a newborn infant: that is, he doesn't do anything but lie there on the floor or in his crib; he can't take care of himself, and he requires 24-hour medical care.


My son was born brain damaged. The doctors said it was an accident, but they accidentally dropped him after he was born, and now he is severely handicapped. I am still trying to sue the doctor who did this to him; he is still in practice, and it sickens me whenever I think of it.


At the age of six, my son is totally wheelchair bound (he will never walk), and he has to be strapped into his chair if he wants to sit up; he can't do it by himself. If he did, he'd just fall right on over. He can't eat: he is tube-fed by a tube in his belly; we feed him four to five times a day, to try to get needed nourishment to his thin, waif-like body. He is not toilet-trained: he wears diapers; he can't even go to the potty by himself.


My wife works part time; I did work, but was laid off. All my waking hours are spent with Andy, caring for him, making sure his needs are met. I need a break, but it doesn't look like a break is coming anytime soon. Between caring for Andy and the other two children (Tyler, nine, and fourteen-year-old Gianna), my schedule doesn't permit much in the way of free time. Now the other two children are healthy, but they get jealous of Andy because we spend so much time with him.


I hear Gianna mutter that she hates her little brother, and I hear my younger son say that he wishes he'd never been born. Of course, this hurts deep; I love Andy with all my heart and soul. He is a beautiful child, a child who was cruelly stamped with the mark of cerebral palsy/brain damage, a child who has had a rough start to life--and continues to struggle even now.


I try to be positive regarding Andy's situation, but when he gets sick or messes up his diapers, or throws up after a feeding, it's hard to deal with, especially on a daily basis. It seems that every month or so he ends up in the hospital because he caught a cold or pneumonia again, and I am tired of dealing with his ever-increasing medical bills.


Maybe it would have been easier had we placed Andy in an institution, so we could get back to the lives we had prior to his being born.


God, how I miss the old days. How I miss the vacations, the sporting events, the time spent with Gianna and Tyler, even my wife. Now we are saddled with a disabled child, and with all his crushing needs, our lives are quickly unreaveling fast. I feel so alone, so helpless; I wish there were others who knew what I am facing!


How does a guy put up a severely handicapped child up for adoption? I am seriously considering this; I can't handle it anymore! I am past the breaking point!

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Reviewed by Mary Patterson 5/6/2007
Even tho this is a fiction write, its a reality for many parents. To have a child who needs total care is heart rendering, and I can really relate to this subject! Its a 24/7 job. All pay a price.(He did too). Its not easy. The Dr misdiagnoised Joshua too and did not send him to specialists when we asked.( We should have insisted!We trusted him .) I don't think the out come would have changed tho..It was meant to be. This story brought many painful memories back to me about Joshua.. Bless you....M
Reviewed by Michelle Kidwell Power In The Pen 5/5/2007
It is enough to break even the strongest of people, but the children are special, your story reminds me of a young boy I worked with while in highschool he too had Cerebral Palsy, he was thirteen but as helpless as an infant, but you know what his smile lit up a room and if I was having a down day all I would have to do is look at that boy and his smile and I immediately realized how blessed I was
God Bless
Michelle~
Reviewed by Jeanette Cooper 5/5/2007
Your story really reflects the enormous responsibility parents must face when they have a handicapped child. It effects the lives of the entire family. The real horror, however, is the poor handicapped child who must live inside such a non-responsive brain and body. Seems like cruel and unusual punishment to me to continue in such a life.

You've really done a great job on this one, Karen.
Reviewed by Joyce Bowling 5/5/2007
It takes a special person with a compassionate heart to care for children with special needs. I think these special caregivers are the children's blessings or God's mercinaries, earthly angels...but nevertheless doing a great work for God's special children. Enjoyed this my friend!
Blessings,
Joyce Bowling
Reviewed by Tinka Boukes 5/5/2007
I am sure God knows better to give such a child parents that can handle it....I am sorry to say...but I doubt if I could handle it...maybe that is why my little girl died.....God knowing that I was too weak to cope!!

God Bless those Who can!!
Love Tinka
Reviewed by Karla Dorman, The StormSpinner 5/5/2007
Karen,

It takes a very strong, loving, compassionate person to take care of severely disabled children. I know I couldn't do it...I would get frustrated, too. An excellent capture of a family's anguish.

(((HUGS))) and love, Karla.

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