A young girl struggles with a little understood disorder that's left her prematurely bald at the age of fourteen.
I am fourteen years old, and my name is Tonya Rae.
I have big hazel eyes, a thin build, and am fun to be around.
I wish I could say something about my hair, but the truth of the matter is this: I don't have any hair. None. I'm as bald as a newborn baby.
Oh, I did have hair at one time, but at about the age of four or so, it started falling out. In clumps. Huge clumps. It terrified me. I had no idea what was going on; neither did my parents.
That's when they took me to the doctor's. They thought at first it was cancer; later, all tests came back negative (much to their--and my--relief). It was really strange; I felt vindicated somehow, because of my (thinning) hair. I tried to take it in stride. I tried to live life being a normal kid, but it was hard when kids would ask questions, poke fun at me, feel sorry for me because they thought I had cancer.
It was really annoying. Pretty soon, I got sick and tired, and I started lashing out. I wanted people to leave me alone; I was embarrassed about how I looked, and I didn't want to be seen by others.
Well, one day, I went to this doctor, who thought he knew what my problem was. He suspected I had something called alopecia, which is a disorder that causes hair loss, not only on the head, but on the body. It wasn't unusual for some alopecia sufferers to become completely bald over time (as I had); yet he offered us hope in the announcement that I could wear scarves or wigs as a way to hide my problem.
I started wearing scarves--different colors, co-ordinated with what I was wearing that day--, and I sometimes wore wigs; I didn't like the wigs much because they itched terribly; I would have rather gone without, show my bald dome to the world. (I wasn't that brave yet, plus my head often got chilled.)
It was like a whole new world opened up for me. When I started with the scarves, people took notice. I would fix the scarves in elaborate ways, and I would apply makeup to my face--anything to make myself look good!
I may have had no hair, but I still wanted to look glamorous; I was a typical teenaged girl.
Still am.
I like to listen to rap and country music (my dad kiddingly asks me what you get when you cross country with rap--CRAP! LOL), chill out with my buds, talk on the phone, go to MySpace and visit my friends there--have met some pretty famous folk there; it's too cool!--, read (I'm a regular bookworm!), and draw. I also write poetry, do photography, and help handicapped children in any way I can.
Well, I wanted to let you know about me, so here I am! I will write in here again; take care and God bless!
~Tonya Rae Philmore, aged 14.
P.S.: What do I want to do when I'm older? Be a country singer, just like my favorites, Carrie Underwood and Faith Hill! :)
Me too, Alopecia, it seems so long ago that I tried my hand at pre-med with all its million names, today they are even more.
That at least one is telling the world what the doctors know but don't tell (doctor-patient confidenciality) to comprehend the troubles and misery of many children, and, how then cope with their illnes with a lot less of moaning that adults do.
Bravo!
Georg
I learned something new here - a new term Alopecia. Tonya Rae's Story is veiled in the beauty of scarves...being pretty on the inside will always make us pretty on the outside...Thanks for the story today, Karen Lynn...be well you and Karla...see you on Myspace.
Re-Release! No longer back-listed. Return to the Olde Ways. The hustle and bustle of modern day life has brought many of us to a quick fix attitude.This book is for those of you who are fed up; have looked at your life and your loved ones and realize