This is Johnny. I have to let you know that being in a wheelchair is no fun and games...
First of all, I can't walk well enough to where I don't have any trouble getting around. I tire easily, and walking on my crutches is a chore, especially since I have to wear these heavy metal-and-leather braces on my legs.
Secondly of all, I get so tired pushing the wheels on my wheelchair. My muscles just aren't that strong anymore, and I get tired fast. It is also a pain trying to get in or out of my wheelchair, especially if I happen to miss (in which I have, several times; instead of getting into my wheelchair I end up on the floor, and that can be PAINFUL!!).
And third, my bottom gets so sore after sitting for so long! I can get some NASTY sores if I am left in my wheelchair for so long!!
That's when I can say I REALLY have a pain in my butt!!!!
Plus people tend to stare at me or say "Awww, you poor little child" and act like I can't do ANYTHING for myself!! Sure, I may need help with a lot of things, but I am NOT HELPLESS; I STILL can do SOME things...
I get so ANNOYED when people ask me if they can help me if I don't need it. This is another reason why I don't really like being in a wheelchair most of the time. But my muscles are weak, and I can't help it. (I have this disease where my muscles are getting weak, and eventually it will kill me. My disease is called muscular dystrophy, and I have the bad kind. The one called "Duchenne's".)
It also isn't fun when I get stuck, whether it is in a doorway, in an elevator, on a curb, or in ice or snow; or even on the sidewalk. It is worse in an electric wheelchair (which I use; it's a lot easier for me) because they are heavier than a regular wheelchair, and I just don't have the strength to push it. I often have to ask other people to help, and then I get all embarrassed and feel like a total fool.
THAT is probably the WORST thing about being in a wheelchair. Also there are a lot of places that aren't able to accomodate wheelchairs; and I have to be carried in a lot of the time, like I am a big baby or something. That is really humiliating, especially in a place I've never been to before or in a crowded restaurant.
Then I wish I could die right then and there or have the floor open up and swallow me....
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Reviewed by kimberly reed
12/12/2008
I know a 14yo boy that is in a wheel chair,i dont know why he is in one,but i do know the time i've known him it's been the most depressive,but best time of my life,basically im happy when i talk to him n i love him so much,i push the pain aside n try to help him to understand,as well as learning my self,im learning how people feel,what they go thru etc in wheelchairs,even if me n jon decided to split n go our seperate ways,i believe id still be happy b/c i got to learn n find out what you are really like how u feel n all that about bein in a wheelchair,i got to add to this,it's not easy with the time i've spent getting to know jon,n his true side to the wheelchair,at times he wishes he cud walk,at other times he dreams that hes walking,wakes up sad b/c he can't walk,i pray my info here has helped any,n im srry,n i will keep praying for all in the wheelchairs,for them to someday walk,n yes i am aware that most in wheelchairs wont walk at all,but in gods eyes all is possible,so never ever give up. Thanks sincerly Kim!
