Nashville, TN., August 27, 2009, 11:56 a.m., D.S.T.~

Dear Journal~

Please forgive me for not writing lately; just haven't had the strength or the heart to do so.  My little girl, my Kaysa Marisse, breathed her last on July 4, 2009. 

She was only three years old.

Kaysa had Niemann-Pick disease, which caused all sorts of health issues.  She had problems getting rid of the extra cholesterol that built up in her system; because of it, she was often a very sick little girl.  She suffered terribly, as did we; we hated seeing Kaysa having to go through so much in her young life.

Kaysa died of a massive stroke; she had that July 3 and fell into a coma.  She never woke up again.  That was when I made the painful decision to have her removed from life support; there was really no hope for her.  She died on July 4, 2009, at 2:30 in the afternoon.  She died in my arms; we were all with her when she died.

The funeral was three days later, on the 7th.  She is buried at a cemetary not far from where we live; we visit her grave every day, where we talk to her, and pray to God to help us get through yet another day without her.

People have been so amazingly supportive during our time of sadness; it's been incredible!  Every day we get calls, cards, or letters from our family or friends, asking us if we are okay or if we need anything.  Our church family has been stopping by, bringing us food, money, or other necessities, and lifting us in prayer, which has helped tremendously.

We have decided to start a foundation for Kaysa, "we" being my sisters and myself.  We want to raise awareness of Niemann-Pick disease and see if we can help towards finding a cure or perhaps treatment for the disorder, so no more innocent little ones will have to suffer.

Days are hard without our baby daughter.  Kaysa brought so much in the way of joy, even in times of hospital stays or sickness; she was a very happy, social little butterfly who lived life to the full.  She was a little spitfire; up to a week before the stroke, she was a whirlwind of inexhaustable energy.

Now Kaysa rests in Jesus' big, strong arms; she is an angel, healthy, happy, and healed.  Whole.  She no longer has to worry about pain, sickness, or people doing bad things to her; she can enjoy the angels and the beauty of Heaven and laugh/sing to her little heart's content.  She can run around, laugh, and be the child she couldn't be here on Earth.

While it is difficult as we continue to remember her, we do have many happy (and not so happy) memories of Kaysa; she will live on in our hearts, and in the hearts of those who knew her best.  We have hope that we will be reunited in Heaven when Jesus comes back to take His children back with Him; that will be a most unforgettable day!

We know where Kaysa is; that's what keeps us going, even though she is no longer living.

Well, Korinne, Kenny, and myself are going to the cemetary, where we will have a picnic lunch right by Kaysa's gravesite.  That way, she can "join us" in spirit, and we can enjoy a beautiful late summer Tennessee day.  We will then go to the park, where I can continue to journal and the kids can play and let off some steam.  It's been raining the past few days; now that the weather has finally broken, and cleared up, the kids can unwind.

I will write in here again soon; until then, this is Kaylee Beausoleil saying so long and God bless!  Keep us in your prayers, esepcially on the days where we miss Kaysa the most!  We would greatly appreciate them!

~Sincerely, Kaylee Beausoleil.  :(  *tears*

*To be continued.*