
Dean Townson here. I am sorry if I haven't written in a while. Had surgery back in July, and I am still in the process of healing.
Remember those troublesome tumors I mentioned, the ones on my neck? Well, they are gone; I can breathe much easier, which is a huge relief. I just hope they don't come back, but there is a chance that they could, but now that they're gone, I can enjoy being able to breathe better and not depend so much on my oxygen.
I am doing about the same: no big changes in my life. I just stay home and try to entertain myself. The only time I do go out is when I see my doctors. I lead a very sheltered life and it's because people have forced me to stay inside. I mean, I am not pleasant to look at. My face is distorted by ugly tumors because I have neurofibromatosus, or elephant man's disease and even when I have surgeries, the tumors come back.
They always come back.
It's extremely frustrating. I have had more surgeries than one can shake a stick at and people oftentimes don't understand the pain and suffering I have to endure just so I can look like anyone else ... only to have the damned tumors return.
I have an extreme case of neurofibromatosis. Maybe not quite as bad as John Merrick (aka "The Elephant Man"), but not far from it. I can't tell you how many times I've been in and out of the hospital (mainly for surgeries). It's really a pain (literally, in my case)!
I've had so many surgeries I've lost count. And I will probably face more in the future.
Well, I have to run along. I have to see Dr. Fuentes; he's my main neurologist. He wants to see how I've been doing since the surgery; it's my post-op checkup. Pray that I get a good report; I could really use some good news! Thanks in advance!
The appointment is at 11:30; that's almost a half hour from now.
~Dean. :)
~To be continued.~
Oh, a little good news: I finally got approved for my SSDI!! About TIME is all I can say!!