Category: Children Publisher: Lulu Inc.
ISBN-10: 1411620194
Type: Non-Fiction
Pages: 60
Copyright: June 2012
ISBN-13: 9781411620193
Price: $2.99 (eBook)
DO YOU OR A LOVE ONE HAVE EPILEPSY? DOES YOUR CHILD HAVE EPILEPSY? ARE YOU LOOKING FOR AN EXCELLENT CHILDREN’S BOOK TO TEACH WHAT EPILEPSY IS TO YOUR CHILD?
DO YOU OR A LOVE ONE HAVE EPILEPSY? DOES YOUR CHILD HAVE EPILEPSY? DOES YOUR CHILD KNOW WHAT TO DO IF SOME HAS A SEIZURE? ARE YOU LOOKING FOR AN EXCELLENT CHILDREN'S BOOK TO TEACH WHAT EPILEPSY IS TO YOUR CHILD?
Millions of people have epilepsy or experience seizures. Are you one of them? Are you trying to figure out how to explain to your child or a child in your family about epilepsy and what to do if someone is experiencing a seizure?
Inside this children’s book, you'll discover...
·A simplistic explanation about what is epilepsy, written just for children
·What to do if someone is having a seizure
·How to help educate children about epilepsy
·A story that will eliminate children's fear of epilepsy
·Epilepsy organizations, websites and resources that can help people and their families who suffer from epilepsy
·Valuable information about epilepsy
·And much more…
There are so many myths that still roam through our society about epilepsy. "My Mommy Has Epilepsy" gives children and their family truth; medical facts explained in simplistic terminology so there is a clear understanding about epilepsy.
Author Stacey Chillemi provides spectacular proof that children really understand more than you think. Illuminating the cartoon illustrations of confusion and fear that epilepsy can cause, this new edition of My Mommy Has Epilepsy uses lively, subversive illustrations to show how to understand what epilepsy is and what to do if someone is experiencing a seizure. This picture book is sure to elicit a clear understanding and opportunity to eliminate children's fear of epilepsy from all who read it.
Excerpt
Living life with epilepsy can be a colossal struggle. But, if you are Stacey Chillemi, it is a challenge and an opportunity to help others.
Stacey Chillemi is 32 years old, a mother of three, a wife and writer. Her journey and reason for being is defined each day by the happiness in her children's eyes and the people with epilepsy she has helped through her writing. "Through this experience with epilepsy I have learned to accept my limitations and to change the way I look at things. Through my writing I am able to help others and just knowing I've helped is enough of a reward," said Chillemi.
How it Began
At five years of age, Chillemi contracted encephalitis from what doctors' surmise began as an ear infection. For four days she lay in a coma and doctors were unsure of whether she would suffer from paralysis as well as the extent of the brain damage. Fortunately, she recovered from her bout with encephalitis with no paralysis. However, she was left with epilepsy. Since her diagnosis, 27 years ago, Chillemi has had seizures ranging in severity from mild seizures in her sleep to tonic-clonic seizures.
Living with Limitations
As a mother of three and a woman with epilepsy, Chillemi is realistic about her limitations, "Having epilepsy and being a mom is difficult at times because I worry that if I have a seizure and I am unable to recover fast enough, that my kids will suffer," said Chillemi. In fact, the entire time Chillemi has been a mother she has had only one tonic-clonic seizure resulting in serious injury. According to Chillemi, she was walking the dog with her children when she felt a seizure coming on. She immediately instructed the children to go inside and wait downstairs for her. Following the seizure, Chillemi realized she had suffered a head injury and reached out to a neighbor for help. After the tonic-clonic seizure Chillemi decided to write a children's book, called "My Mommy Has Epilepsy". Her goal was to help children understand epilepsy in an age appropriate way as well as to help dispel some of the fear she had witnessed her own children experience. "I don't want my children to get nervous or to worry about my seizures and the tonic- clonic seizure really motivated me to write a children's book to help them and other kids cope and understand epilepsy."
She admits she is also limited by not being able to drive, but attributes her ability to ask for help when she needs it as one more lesson learned. "At first it was difficult to rely on other people to drive the children and me places. I felt bad asking family and friends. But, now I've accepted my limitations and accepted who I am."
Wisdom for Women
Chillemi cautions women with epilepsy to monitor their stress level. "Don't try to accomplish too much. Do as much as you can and remember to set realistic goals and to reward yourself each day." She also believes that in order to live with epilepsy and maintain a positive attitude it is important to focus on one's self. " Don't look at what other people can do, only focus on yourself and your abilities because if you constantly compare, then you are adding to your stress level, which leads to being more physically drained and ultimately leaves you open to experience more seizures." She advises women with epilepsy to educate themselves about their epilepsy and believes knowledge helps alleviate stress as well, "Women need to consult with their doctor, but not rely on their doctor for all of their information. In order to really feel empowered it is essential to take the initiative to learn all you can about epilepsy."
Professional Reviews
Editorial Review -Anchor / Talk Show
Host /News 12 NJ, Review:
"Life deals us many hard blows that we often don't expect. I admire the fact that someone like Stacey Chillemi was thrown a curve ball that may have knocked many of us down to the point where many of us may not have wanted to get back up, but she did. It wasn't easy but she possesses a determined spirit that won't let her give up. For that reason Stacey will go far and achieve whatever dreams she sets her mind to accomplish."Della Crews Reporter
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