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In light of broader screening, parents aim to share positive stories.....
Thils article was acutally buried within the pages of my local newspaper and I almost missed it. It will pull at the heart strings and force potential parents to really think their decisions through before reacting. This story begins with a little girl, Sarah, who is wise beyond her young years.
"Sarah Itoh, self-described as "almost eleven and a half" betrayed no trace of nervousness as she told a roomful of genetic counselors and obstetricians about herself one recent afternoon. She likes to read, she said. Math used to be hard, but it is getting easier. She plays clarinet in her school band. She is a junior girl scout and an aunt and she likes to organize, so her room is very clean. Last year, she won three medals in the Special Olympics." "I am so lucky I get to do so many things," she concluded. "I just want you to know, even though I have Down syndrome, it is OK." "Sarah's appearance at Henry Ford Hospital here is part of an unusual campaign, being under-taken by parents of children with Down syndrome who worry about their children's future in the face of broader prenatal testing that could sharply reduce the number of those born with the genetic condition." "Until this year, only pregnant women thirty five and older were routinely tested to see if their fetuses had the extra chromosome that causes Down syndrome. As a result, may couples were given the diagnosis only at birth. But under a new recommendation from the American College of Obsttricians and Gynecologists, doctors have begun to offer a new, safer screening procedure to all pregnant women, regardless of age." "About ninety percent of pregnant women who are given a Down syndrome diagnosis have chosen to have an abortion." You know, I can, in all sincerity understand how parents, mostly mothers would chose the option to abort the baby if it was found to have Down Syndrome. Yet, it makes me wonder too, was the choice made out of selfish reasons or from what the future would be for the child? Do we really have a right to play "God" or should we just accept with open arms whatever fate has dealt us? These certainly are not easy decisions to have to make either. "Convinced that more couples would choose to continue their pregnancies if they better appreciated what it meant to raise a child with Down syndrome, a growing group of parents is seeking to insert a positive perspective into a decision often dominated by daunting medical statistics and doctors who feel obligated to describe the difficulties of life with a disabled child." What would happen if we found that the way to irradicate all disabilities was to keep aborting babies until we got the perfect model we were looking for? How many more babies would be given the death sentence when their only crime was in attempting to be born and live? Who are we to be playing "God" and choosing who will live and who will not? In the begining of this article, it opened up with a beautiful little girl speaking in behalf of all who are born with Down syndrome. Think what her parents would be missing if they aborted her just because she was not the perfect human model? The love that would never had been shared? We must all ask ourselves how far do we want technology and science to go? What of all the other "defects" we humans are born with? Are we going to test and abort all babies for any defect in the future? Who will determine what a defect is? Is it that we are afraid to face what we have created? Or have we become so selfish that we forgot how to give to another human being? "The richness of their children's lives, parent advocates say, is poorly understood. Early medical intervention and new expertise in infant heart surgery stave off many health problems. Legally mandated inclusion in public schools has created opportunities for friendship and fostered broader social awareness." Perhaps the time is now for us all to re-evaluate our priorities. Ask yourself, if my decisions will affect my child, how much would I be willing to sacrifice? Am I so shallow that I would keep trying until I delivered a perfectly healthy baby or would I gladly accept and love what God has chosen for me?
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Blessings,
Joyce Bowling
An effectively thought provoker you've penned once again; who are we to determine what is "normal?" "Acceptable?" These kids may surprise you: some of the most loving, beautiful children I have known are those with Down's. Well penned, my (((friend))), the voice of reason in a world gone wrong.
(((HUGS))) and love, Karla.
He is a big help to my mother right now as she is going to be 84 years old yet I've long ago wish she had allowed him his own life when he was twenty and had to leave the school system. Many advised her to allow him to go to work and even live in homes they have developed for these children in society. My parents chose not to.
I'm sure how it will be for him when she passes thought he will stay with the family who live on the property now with them, it still will be such an adjustment at his age.
He is a well functioning mongloid yet I have seen so many though full of love as these children are, they are subjected to much cruelty from the public that they do express hurts their feelings. If you have only known the ones that excel it does seem like a rewarding decision yet if you've seen how most of them are it would make that decision harder then one would think.
I don't think for many it comes down to selfishness as much as having that chose and making it on a very heartfelt decision. Whether one believes in abortion or not it is their choice. I never believed in it for myself, yet I have many girlfriends who took that chose in their early years. In fact I lost a very close friend who would have delivered the same time I did and she came to see my daughter once and could never come again.
They all remember the pregnancy as any of us would have after a miscarriage. It's not a heartless decision for any of them. It's just a decision they live with. Thanks for the article Karen, it's worth others thinking about. Lady J
I believe a child born handicapped should have a chance to live; to abort them because they aren't perfect is cruel, inhumane, and heartbreaking. I believe a child who is born disabled should have all the opportunities in life as does a child who is born "normal" (but then what is "Normal" nowadays??). A powerful read you have shared today; thanks for the sharing! Very well penned!
(((HUGS))) and much love, your friend in Burleson, Karen Lynn. :( >tears! <
Down Syndrome, in Norway they have a group called Disimilis (roughly translated, Different) which are well known for the music they play.
I have the fortune of know very well two boys and a girl (no siblings)
which are all heart, kind and the honest face of true love.
While I do not approve with the desition of terminate pregnancy because of the extra gene I can't play God either by deciding what they should do.
I think it all come down to what dictates ones conscience.
Warmly
Georg