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Sometimes, IT is NOT in your head...
I wake up with IT.
I go to bed with IT.
What is IT that keeps me company?
Toss and turn at night in agony?
What is the cause of my misery?
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IT is there.
Twenty-four seven, three hundred and sixty five days a year.
Unremitting. Unrelenting. (But you will have your "good" days, when IT isn't so bad.)
Always making ITS presence known.
Interfering with all aspects of your life.
IT determines whether or not today will be a good day or a bad day.
IT determines if I will get a good night's rest or not.
IT ruins relationships, because everything has to revolve around IT and not "us."
IT ruins employment, because IT may not allow me to fully perform my job...I may have overslept, because IT didn't want me to move, I may not be able to do everything my job demands, because IT won't let me.
What is IT? Pain, due to Fibromyalgia (FM).
Fibromyalgia ("fie-broe-my-AL-gee-uh") is a chronic ("long lasting") condition or disorder that causes widespread pain throughout the musculature of the human body, including soft tissue, muscles, tendons, cartilage and connective tissue; it also causes fatigue, and "tender points." Tender points occur in localized (small) areas, and seem to target the neck, spine, shoulders and hips.
Experts don't know why Fibromyalgia affects 3-6 million Americans, or why it seems to affect women more than men. Children and the elderly can also be affected.
They don't know what its causes are; researchers believe that it can be triggered by an injury or trauma, be associated with other conditions, such as rheumatoid arthritis, systemic lupus erythematosus (SLE), an auto-immune disorder, or by conditions affecting the central nervous system, musculature, or perhaps by a virus in susceptible persons.
It is an extrememly difficult condition to diagnose. Many of its symptoms mimic other conditions, such as morning stiffness; this could be a symptom of arthritis or other disorder as well as Fibromyalgia.
Sometimes, after going to doctor after doctor after doctor, trying to find relief for their pain or a diagnosis, many patients are told to "live with it" and that the pain is "all in their head."
What the physician MUST do is review the patient's medical history--how long has the patient been having pain? Is the pain chronic, or has it just suddenly started? Is it localized, or is it widespread?
The physician must also do a physical examination and determine if the pain is widespread (pain in both sides of the body, pain above and below the waist) or not. He will palpate, or feel, certain areas on the body and try to produce the painful sensations; to be diagnosed with Fibromyalgia, the patient must have pain in 11 of 18 trigger points on digital palpation.
Fatigue is a common complaint among Fibromyalgia patients; other problems they may have include sleep disturbances, anxiety, morning stiffness, irritable bowel syndrome, and other difficulties.
Treating Fibromyalgia is not easy. A comprehensive approach is necessary between physician, physical therapist, other medical personnel, and the patient. All must play an active role in managing it.
Patients that are diagnosed with Fibromyalgia need to get plenty of rest, especially during an active "attack" (also called a "flare-up"). Experts also recommend that the patient get plenty of aerobic exercise (such as swimming or walking); this may improve muscle strength and reduce weakness, pain and tenderness.
Heat and massage therapy may also offer short term relief. Medication, in the form of over the counter analgesics (pain relievers) such as Naproxyn Sodium, Acetominophen, or Ibuprofen may help. Some patients are also prescribed antidepressants, to help improve quality of sleep, relax tense muscles, and to elevate the mood.
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I was a very active child, played the piano, danced... but some days I felt like I was going to die. Instead, I was told I was lazy!
I'm feeling much better now and there are a lot of things that seem to work for me. Going to the seaside, warm weather rather than rain and cold. Diet when I'm in pain, pilates, yoga and swimming make me feel much better. Also, I have learned breathing and relaxation techniques that help when I'm in pain... And I have found a partner who knows and understands. He even admires me for coping with the condition.
There is hope for all of us. We can beat it or at least don't let it have a huge impact on our lives.
Thank you for this great article. We need to speak up and let everyone know that chronic and (almost) invisible conditions are not "all in one's head"!
Axilea
I might have a partner but I tell you, half the time that is in name only....and most Aussies are obsessed with Skinny Poles ( Women) not the ones with a bit of flesh covering their bones, so that kinda puts me in the YUK basket here. Try exercising to lose weight with this thing, YEAH RIGHT...I do it, till I'm blue in the face, wracked with major pain, for a couple of measly Kilos, or pounds in your measures, and still no lovin!!!!!!
At the moment, I am so Ticked...I'm on the lookout for a bloke who is big and solid, and likes flesh haha.
How bout you dear one, any like that around, with kind hearts??
A dying breed yes, as the Hollywood Mags have polluted Mens minds...ahhhhhhhhhh I better Shaddup.
Love yah heaps Kiddo, am with you all the way.
Love Ch'erie
Then I have days that are glorious - I can walk and play and even THINK. I live for those days when IT goes to sleep.
I found an upside to mine the other day. A friend called to tell me how miserable he had been with the flu. "I didn't care if I died," he said. I realized then that the flu isn't so bad for me any more. Pretty much like every other day.
Okay, gotta find sunshine where I can, even when it's twisted.
He sent me to Houston where we think we can get cured.No cure.
My heart goes out to the sufferiers of this terrible syndrome that few people understand this unrelenting pain. Screaming pain much of the time. Lack of sleep.Days and night mixed up. Pain and more pain.
I say this for the readers who might have some one that suffers from FM. Give as much love and understanding as possible. We hate being in pain all the time. Help us survive.
Thanks , Karla, for writing about FM. I am new to AD.
Rebecca
I hope your days are improving! Thank you for Opening our eyes to this devestating disease, that drains you daily. I hope and pray they do find a cure 4 U and many others.Great write up -HuGs2U-
this is also one of my deals along with lupus. Prayers that you'll have many good days!
Joyce Rapier
You hit it on the nail head. Even tho it (FMS) has only been given a name in the last 10 years or so, only half the medical community recognize it. I fought the Veterans Administration while they kept calling me (or insinuating) that I was having mental problems. You are right about the medical side...I take anti depressant, three (3) anti spasticity pills and alone they did nothing. All three work 99.9% of the time. And to think all this took was one 15 minute appointment. He read my records, asked few questions and he told me what I had. I took the injections on top of the back (5 on each side) which helped out for two days.
Lisa
Oops... sorry hun. Am rambling here. This is an excellent article though with some excellent points. Although my motto is.. I may have FIbromyalgia but it will NEVER have me.
Luv ya hun....
Melanie