In early 2001 I was diagnosed with Parkinson's Disease
This little ditty pays homage to its
worst effect: other peoples' reaction
It is not like loosing your hair
or your teeth;
when they are gone they are gone.
But a bit of lost
co-ordination, ,or balance
here an there
makes you
an object of pity.
The people around you
now longer see you for what you are
witty, assertive, capable
but as the victim of
the worst prognosis…
Should you be so misguided
as to minimize your plight,
you are pathologically out of touch,
in denial of the fate
that your failing coordination,
and lost balance portends.
--+--
But I know
what this condition may do to me
sooner rather than later
perhaps
but that is then
this is now
and now-
now,
I
enjoy the grace that is now.
There are other symptoms shaking, un-controllable movements, stone face. These are not my symptoms. Slow and stiff, that's me.
What ever the personal symptoms, the worst is the reaction of others.
I once worked for a man who had Parkinsons, he was the smartest person I ever worked for. I used to ask him every so often if he was having a bad day and he always would say NO I am having a good day--so I stopped asking. Be positive.
and that is real we like to put labels on people and treat them how we think they should be treated, hard to ignore the faces and eyes change, those that are close let em know I am still me those who aren't later for them
I can surely sympathize with you as Robert's mother also has Parkinson's disease. Her body has now been well destroyed, but her mind and witt is more than up to par. Great emotional write....
I seem to suffer from being "stoned" on a regular basis too...but it comes from outside myself rather than from within...no pity here for you or for me, just got to live life with what you got...Ed
I know EXACTLY what you are saying - the reaction of others is oten times worse than the illness. I'm a carrier for adrenoleukodystrophy, all my 3 sons died from this, as did my nephew and one of my brothers. Now, I suffer from gait and balance problems - being a carrier. People's reaction, though heart-felt, leaves me feeling like I wish they didn't know or see.
In "A Touch of Your Presence" are words that would inspire, encourage and strengthen one's soul when faced with challenges and difficulties and to know the awesomeness of God's power.
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strong slice of real
Be safe,
Karen
It is almost like when my mom lost her eye...we thought she could not hear us!!
Love Tinka
I'm sorry to hear this. :( You're in my prayers.
A lot of strength to sully forth despite having this: you are living with it, not being lived BY it. See that, here in your words; well done.
(((HUGS))) and love, Karla.
God bless you,
Kathy