What its like to have Alzheimers and live with it. (A REPOST from June of 2007) This is what I was like 2 years ago. Thank God for the marvels of modern medicine and medication..3/29/09(
My memory problems have persisted. Sometimes I forget where I am going when driving. Names, places,and words are not always in my mind. My short term memory is less. Sometimes I tell my husband or family members the same thing three or four times. They'll say "you already told us" and I say" well now you know again". When I first started becoming repetative, I became quite frustrated. I'd cry as feelings of being inadaquite trancended.
I would try hard to concentrate yet I still had memory lapses.
One morning when taking one of our sons to work at his regular job site, I became lost. As I drove onto the site, the dirt road went two different ways to the exact same place a few hundered feet away. I didn't know which way to go. My brain felt scrambled and fuzzy! " How do I get there " I asked my son?
He looked at me in a weird way and said" go this way mom", so I did.
When he got out of the car my tears wouldn't stop. I didn't know what was happening to me, neither did he. Finally I composed my self and drove home.
The changes that are occuring are stuble, and happen slowly in small increments. Some days I feel great, and can face anything, then I forget a name, what I was going to say or do. Then I'm ok for a while, then memory loss comes again.
Other days I feel axnious, and am repetative and usually end up feeling depressed. Sometimes crying helps, but it doesn't solve the problem.
When I become nervous my brain feels jumbled and mixed up. I feel like I'm having spasms in it. I can't think rationally nor can I control it. I try to calm down as the feelings recede. Each day is different as I am struggling to come to terms with this.
When I first found out, I felt like a death sentence had been given to me.
My hopes and plans for our future and those elusive golden years were gone.
I prayed,cried, talked with my husband, family and doctor. I read about the disease. I felt like I just could't endure it. I had seen my grandfather, and uncle die from this , and I did not want to go through it too, yet I know it is a cross which I must carry and I need to accept it and do the best I can to make my familys life and mine a little easier. Trying to maintain a positive attitude helps a lot tho its not always possible.
My Doctor started me on Arceipt. I could not tolerate it and became very nausiated so it was stopped. I will be starting a new medication in another week. She also gave me something for my nerves which I take when I really need too.
I needed to do something to help turn my life around, so I decided to write about it. I hope it will help others to better understand what is happening to a person who has this.
Many of my friends on AD have been very supportive. Some have used their resources to help in my quest for more knowledge. Andy sent me tons of information from England . Debby gave me the name and phone number of a natural herbal magazine and place, and Barbara sent news of an article in the AARP BULLETIN THAT THEY ARE CLOSING IN ON ALZHEIMERS. New medical break throughs are being made! It gives me hope and encouragement to go on. I pray a cure will be found for the multitudes who have it. God bless and good night. Thank you for all your prayers.
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Reviews of "Alzheimers, A Disease of the Mind, Part two"
You seem to be doing o.k. still as of June 08. Still with us and writing on the den. I hope God grants you leniency in this disease. You deserve it as you have helped others so much in your lifetime. I know your children will stand by you as mine would stand by me at a time like this. Glad to read these write and so glad you are strong enough to write about it and teach us more than we know with these writes. Thanks.
Dearest MaryGrace also sending prayers up for you. It is outstanding that you have decided to share your feelings emotionally, physically, and medically I too think it will be good therapy for you. Additionally, in a sense it could also serve you well during the times you need to reflect back on a day or two by providing a record of your feelings.
Acceptence and a thrist for the knowledge concerning this issue will also be beneficial in helping you in coming to terms. We will all keep you in our prayers and try to continue to provide and share our strengths at your time of needs.
You describe the helplessness and fear that people with Alzheimer's experience; I am sorry you are having to go through this, but it helps to write about it. Please know you are in my prayers now and always; God be with you during this difficult time in your life!
((((((((((((((HUGS))))))))))))))))) and much love, your friend in Tx., Karen Lynn. :( >tears! <
I am going to call church this week and have you put on the prayer chain if that is okay. You need all the prayers you can get!!
MaryGrace you write so eloquently of Alzheimers and of the hope that is being offered today. You have touched my heart in such a way, I can only wish you well and wish there was something I could do FOR you.....You remain in my thoughts and prayers.....
wonderful writes-i can say that so many are touched in some way by this frightening and sad disease-i wish you well ness and peace-my grandfather, a brilliant scientist fot the US government had Alzheimers and it was incredibly heartbreaking
MaryGrace, what a wonderful, intelligent, writing on how an individual who is suffering the effects of the beginning of Alzheimers feels. This is a great tool for those who are not familiar with the disease and I'm sure this writing will help many readers. My prayers are constantly with you for God to grant you strength and endurance during these trying times. Never give in to the disease, keep fighting with every bit of energy you have. God Bless
Keep writing dear friend, keep searching, keep praying, there are medical break throughs everyday! Stay positive and write on! My prayers are with you!
Blessings,
Joyce B.
Thank you Mary for continuing to share this, with us. It is painful to read since I feel helpless to do anything for you, but I am keeping you in special prayer each day, and I hope your new meds may be of help soon. I remember the man who I cared for saying it helped him a lot to be among people who were humorous and made him laugh.It helped when he was depressed. I know too that most times nothing seems to help and that's the hardest part,it's also when we prayed the most. I hope you can still find things to laugh about, it's good medicine!God bless you!
Re-Release! No longer back-listed. Return to the Olde Ways. The hustle and bustle of modern day life has brought many of us to a quick fix attitude.This book is for those of you who are fed up; have looked at your life and your loved ones and realize
Karla.
Acceptence and a thrist for the knowledge concerning this issue will also be beneficial in helping you in coming to terms. We will all keep you in our prayers and try to continue to provide and share our strengths at your time of needs.
Spiritual hugs and love to you friend,
~Gwendolyn
Regis
((((((((((((((HUGS))))))))))))))))) and much love, your friend in Tx., Karen Lynn. :( >tears! <
I am going to call church this week and have you put on the prayer chain if that is okay. You need all the prayers you can get!!
Be safe,
Karen
Blessings,
Joyce B.
We pray with you, and keep writing, hoping, and fighting, MaryGrace.
I want you to know that you are in my thoughts and prayers, and I am believing a cure will be found
God Bless
Michelle~
Love,
Eileen