The Last Chemo--hopefully forever! 8/14/2008 7:28:13 PM
Esa is one now. It's time for the last in the series of chemo treatments for her retinoblastoma. This time it will include another eye injection.
The eye injections are terrible for her to endure, and terrible for her Mommy and Daddy to see. Following is Daddy Blair's latest report:
THURSDAY, AUGUST 14, 2008 02:27 PM, CDT
things have been very nonstop for us the past few days. school has started back up for me. it is a 2 week class that is very intense. so that is why i havent had much time to update. esa is doing great right now. she is feeling good, and very happy. she is communicating so well. we dont really ever not know what she wants. she is pretty amazing. she had the psychological testing last wed, and she did great. they finally stumped her at a 33 month old test. she is 14 months today. we were so proud of her with how well she is doing. the lady that did the test said ' i dont even need to look at her results to tell that she is doing great.' the last time we met with her she just got done with round two of chemo, and she didnt do very well, except in vision. we were very suprised that she was behind in alot of things but placed very high on visual reception. but now it looks as if she is catching up. we are thinking that she is going to be done next saturday with chemo. she will start day 1 on tuesday, day two will be chemo, and the 3rd and final injection into her right eye, and then chemo until saturday. sunday we will go in for them to unhook her fluids, and monday and tues will be check ups. i think they will have her go in every week until her counts are back to normal. they will leave in her line until Christmas, and then evaluate. every 3 weeks from her last round they will do the eye exams under anaesthesia. our fight starts then. we are excited, and so nervous about what will happen within the next year, but at least the sickness and not being able to be around people will be better. we will always have this on our minds, but there will be so many more good days, than bad ones. thank you all so much for traveling with us in the journey. the first part is almost over, and the second battle is about to start. next week will be the hardest round, because her body is so toxic from all the previous rounds, so we are expecting her to be very sick, and the eye injection is by far the hardest part to deal with. so we are asking you to pray that the Lord will bless us with the seed to be dead. that way we can just deal with the chemo, and not her depression, and the pain that last for months afterward in her eyes.